I must say that I have been very lucky to have experienced very few side effects during my cancer treatments. I know that many cancer patients deal with side effects that can be very debilitating. I would consider my side effects to be relatively minor in comparison. I am blessed and thankful for that. I talked about some of my side effects in a previous post Side Effects: Short Term Pain for Long Term Gain?
I continue to have most of these side effects mentioned in that post, but some seem to have reduced in severity (or perhaps I am just getting used to them more now). My current side effects seem to be related to the five senses, specifically taste, smell and touch.
Taste
Since my ability to eat solid foods has returned (hooray!), I must admit that I have been indulging in eating all of my favourite foods (in some cases to excess). I have gained back most of my lost weight, which I consider a good thing as my weight drop was beginning to be a concern. I had dropped over 30 pounds in a short time. This is not a concern any longer! I am almost back to my original weight. I guess I need to cut back on the snacks (we call them salty crunchies) and sugary treats. My current mindset is "What the hell! Eat what you want Richard!" I may need to rethink this mindset soon.
I am fortunate to be able to eat again after being on Ensure shakes and broths/soups for a few months, but my taste buds are really off. As I mentioned in my earlier post, you never really realize the impact that food plays on most aspects of your life. Food is part of our culture, our identity and our social being. It is a focal point of our day. I am glad to be able to enjoy the social aspects of food again- family dinners, going to restaurants, visiting friends for dinner, etc.
One of my current side effects is that I don't really get the full, rich flavours of foods like I used to. They all seem muted and in some cases, tasteless. I am not really complaining as the variety of flavours, textures and food options has improved substantially since being able to each solid foods again. I hope to never go back to only being able to eat liquid foods, I will if I have too, but would prefer not to return to this limited diet.
Michelle has been hard at work making some of my favourite foods and baked goods. I definitely ate my share of turkey dinner, freshly baked holiday cookies and Buche de Noel over the holidays. We have been blessed to have friends and colleagues bring me homemade soups, special chicken broth, assortments of candy & ginger to help with my dry mouth and taste bud issues.
Smell
My sense of smell has also been heightened during treatments. I now have a smelling super power! I'm like a human bloodhound. I keep asking Michelle, "Can you smell that?" This is not always a good thing. Lately I have been smelling some 'nasty smells'. I am not really sure where they are coming from (perhaps some are coming from me internally) or why I am smelling them, but they are nasty!
To help block or cover these smells -a Michelle innovation - we have created small smelling jars with coffee beans and lavender buds placed around the house that I will sniff to block out the bad smells. as needed. It seems to work (most times). When out and about, my heightened sense of smell can be a bother. I seem to be able to smell 'nasty' smells all around me. Not pleasant at times, but it is manageable. I am hoping that after my last chemo next week, this side effect will be reduced or go away.
Touch
I have been finding that my skin is often itchy and dry. My first thought was that this was just the winter weather that was causing this, but this is more than seasonal dry skin. I also notice that my hands and feet sometimes form small blemishes (especially between my fingers). My oncologist indicated that this can be a normal side effect of treatment. He suggested that I use medicated hand/body cream to help with this. This seems to work and the blemishes disappear in a few days. As a preventive measure, I lather up with hand cream all the time! (something new for me. I was never really a hand lotion kind of guy!)
At times, I get little tingles throughout my body. They are like sparks. They feel like little mini fireworks going off inside my body. They happen for just a few seconds. Not really sure what they are. They worry me at times. I assume that they are little reactions/side effects from my treatments.
My legs and knees also seem to get sore easily. Not sure if this is a side effect or just old age creeping in on me! Nonetheless I keep walking, keep active, and rest when I need to.
I have thankfully have had no nausea, no vomiting, no hair loss, no debilitating side effects during both my radiation and my chemotherapy treatments. I am thankful for this! I can live with these minor nuisances that I am currently experiencing. They are manageable and don't really effect my quality of life that much.
Here's hoping it stays this way for a long time!
Richard
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