I get knocked down.... but I get up again!

The weeks and months seem to be both flying by and never ending at the same time right now. It was hard to believe that my three month time frame for check up testing was fast approaching again. My oncologist ordered another CT scan to check on the progress of my second regime of chemotherapy treatments. Previously, in my blog posts SCANxiety and SCANxiety2  I  talked about the worry and anxiety that surrounds these tests for both the cancer patient and their families. These tests can bring hope or despair.  What will my latest test results be? 

Unfortunately it resulted in mixed results.  My cancer seems to be very stubborn and uncooperative!  It is still progressing despite the current treatment being given to suppress or eliminate my tumours. It is time again to pivot and cycle to the next stage, to control the spread of this disease. Plan C here we come!

At this time I have been referred to the Princess Margaret Hospital in Toronto and the potential to participate in a clinical trial with a new drug targeting my form of cancer.  We are hopeful that it will be something that I will be a suitable candidate for and able to join as soon as possible. My oncologist seems to think that I am a good candidate for this study and is advocating for me to join with the team at the hospital.

We definitely have mixed emotions at this time. On the one hand we are very disappointed and heartbroken (honestly) that my current treatments are not working or have stopped working. Although the side effects were increasing with this treatment, it was still manageable and attending Southlake for these treatments was really stress free for our family due to its close proximity to our home.  On the other hand, we are happy that there is another possible option out there to cycle through to help control my cancer.  Princess Margaret is a world renowned hospital for treating cancer and we would be fortunate to have this level of expertise and care supporting my treatments.  Fingers crossed that it all works out. Stay tuned. We will give you an update when available. 

You must know by now, that I am just as stubborn and uncooperative as my cancer seems to be. I will not give up! I will not stop until every option is exhausted and we'll keep on pivoting and cycling on. 

Take that cancer!

Richard

SCAN-xiety 2.0- Unwelcome News

Previously, in my blogpost entitled SCAN-xiety, I talked about the rollercoaster ride cancer patients and their families go through regarding tests and scans. In that post I described the intense emotions that each test cycle creates for me personally and for my family. It all starts with the worry and wonder leading up to the test. Followed by the anxiousness on the day of the test and finally the concern and the dread of the possible results or outcomes from the test. I must say that waiting for the test results is definitely the most challenging part. Hence the term, SCAN-xiety. 

Last week, I had my regularly scheduled CT scan (which I have booked approximately every three months to keep us and my medical team up to date on the progress of my treatment). It was, like previous scans, fairly routine except perhaps for the new hospital protocols that are in place due to the ongoing COVID-19 issues.  The CT scan itself takes about 15 minutes. The machine pushes you into a cylinder tube that is rotating. It tells you to hold your breath for five seconds (it seems longer than that).  The platform then moves you slowly out of the tube (while you are holding your breath). This happens a few times. Fairly painless overall, except for a few slightly claustrophobic panic moments in the CT scan tube perhaps.  And then you wait! Waiting is painful, not literally but emotionally. 

Usually you wait until your next scheduled appointment with your oncologist to get the scan results however a few days after my scan I received a call from the hospital to indicate that my oncologist wanted to book a phone consult with me.  This was a week earlier than anticipated to discuss the results, which is not usually a good sign. Our family's anxiety levels immediately starting rising after getting off the phone. 

Unfortunately my early phone call was not good news. My most recent CT scan results had shown that my first line of treatment, which had been successful up until this point, was no longer controlling the spread or stopping the growth of my disease. My oncologist indicated that it was time to move onto the second line of treatment options. 

With our medical team, we are now in the process of determining our next steps, which will definitely include a new round of chemotherapy, a new cocktail of chemo drugs to fight this disease.

However disappointing and discouraging this news is for me and my family, we fight on! It is very hard to reconcile this news, with outward appearances and how I feel overall.  My energy level is good, my appetite is good, my outlook is hopeful and I continue to do most all of the things I normally would be doing.  We stay positive and we hope and pray for better news to come. 

We will not give up!  

"Being challenged in life is inevitable, being defeated is optional" ~ Roger Crawford

Richard

Remember When.......

This week's blog comes courtesy of My Michelle. 

This coming week, Richard and I will be celebrating 32 years of marriage.  You know how people always say, "where did the time go", "it seems like it was just yesterday", or "you haven't changed at all".  Well a few weeks back, Richard and Jonathan rigged up our old VCR and we watched our wedding video from 1988.  Well, it was definitely 32 years ago and  we definitely have changed!  But, it was really so much fun to talk to the kids about the "back story" and relive the memories of that day.  

There is something so magical in memories and telling stories of times gone by to your kids.  Its an enduring thing in families I think.  I know my brothers and sisters and I loved to hear my mom's version of how she and my dad had met back in the 50's, how they had met at a barn dance, how he had asked her to dance and she turned him down!  Dad would tease her and tell another version of the story, and well, long story short and after much eye rolling, thank goodness dad persevered and the rest, as they say, is history!  We were digging through some old documents the other day that Richard's mom had saved and came across some love letters from his dad to his mom that she had lovingly saved.  So happy we have these memories to share and pass on to our children, the stories of our lives.

One of the great things about our wedding video is how it captured the music, the dancing, all the fun that we remembered during our reception. Seeing all the disco dance moves, watching that crazy conga line, all of the bridesmaids in their beautiful blue dresses swirling about the dance floor.  Pure Magic!  Re-living the beautiful speeches, words of advice and wishes from our loved ones.  Then there we were: so young, so optimistic, the world at our feet.  Richard had graduated from teaching at Queen's the day before, and I had just completed my third year. We were in such a hurry to get started and share our lives together.

I guess it is only natural heading into this anniversary to be particularly thoughtful and remembering days gone by.  We have a shadow hanging over us all for sure, as we battle through these days.  For us it is a battle for time and preserving Richard's health.  We have scans, tests and treatments that create a great deal of anxiety for all of our family. It is as much an emotional and mental battle as it is a physical one.  What helps?  As you surely know by now, we love music and dancing.  One of our favourite songs is an oldie by Alan Jackson called "Remember When", a tear jerker for sure.  It is truly a song suited to anniversaries and about a love and life well shared.  

If I could, I'd still do it all again!  

Put on the music Richard, meet me in the kitchen and let the dancing continue!

And we'll remember when.

Love Michelle

Anticipating a perfect summer day!

We are so happy that the weather has finally improved and we can all get outside and enjoy some sun in the backyard. It has been a long few weeks being cooped up in the house. Cabin fever was beginning to set in for sure for us.

Michelle and I love to garden. It gives us great satisfaction to clear away the dead debris from our gardens and around our pool to see the perennials and hosta plants trying to peek out towards the sun. We swear that they grow a few centimetres by the end of that first day of cleaning. We love to go to the nursery and pick out our vegetable patch plants and our beautiful hanging baskets the colours and aromas in the nursery are a sure sign of Spring. Luckily the nurseries have been allowed to open this week so we can get to visit them.

We take great pride in our backyard oasis. It takes several days to get it back into shape after the winter. We are amazed at how quickly the weeds can grow (faster then the perennials for sure) in the gardens and in between the interlocking stones.  This week we bought four yards of mulch and have been topping up the beds with it. Amazing what a light topping of rich, black mulch can do to control the weeds and make it look so good. I am thankful that I am still able to fully work in the garden and am really surprised that my stamina remains (although I must admit that I can't go at the pace that I once did). No full out energizer bunny mode however. Slow and steady wins the race, right?

Another sure sign of spring is our annual pool opening. We opened our pool late last year and regretted it, as the warm weather came early and we missed out on a few good weeks in & by the pool. This year we decided to open the pool early. That was a mistake. We have had several days of snow (yes snow) and rain since it has opened. We decided not to turn on the heater. You can't win! We hope to finally turn on the heater this weekend and begin to fully enjoy our pool. Lounging by the pool is so relaxing. It is one of our favourite things to do in our backyard.

Our BBQ has already been busy grilling a variety of menu items. We are currently in the middle of an Erdmann family rib fest contest. Jonathan, Joshua and Michelle have all had a turn so far making their own dry rub and bbq rib sauces. It has been a close and delicious contest for sure. I'm not sure I can top those rib sauces but I will give it a try later this month. We haven't had our pizza oven on the bbq yet but maybe we will be able to get it going this weekend. We are also excited for our first bonfire of the season. Nothing is better then sitting around a crackling fire, roasting marshmallows and watching the glowing flames dance in the moon light. 

Finally it is almost badminton season. We can't wait! The Erdmann's love badminton and we take it very seriously. Our net broke last year so we are a bit delayed in the start of the season. If you happen to get a glimpse of us playing you will most likely witness a gentle game of 'how many volleys can we get over the net' quickly turn into a spike drive battle where the birdie usually ends up torpedoed into someone's body. Don't be fooled, we are fierce badminton players. Watch out! 

I am hopeful that I will still be able to participate fully in these wonderful family outdoor activities this summer. At the moment it looks very promising. My health has been good and I am able to fully participate in all of them at this time. I hope it stays that way! These activities allow us all the time to take our mind off of our current circumstances. They are a wonderful distraction for sure. They bring us joy and bring our family together. More great memories.

Sunshine is the best medicine!

I hope that you are enjoying your backyards and families too. Make new memories and treasure those moments you make together.

Richard

Unsinkable! #Unsinkable

A big thank you to Unsinkable for sharing my story and my personal cancer blog!  You can find my article under the Neighbourhood Heroes section. The article is called Fighting Cancer with Positivity. Check it out if you get a chance.  

Thanks to all for following my journey!

Richard

Just keep swimming, swimming, swimming!

Throughout my educational career I have always tried to highlight and champion the ideas around growth mindset, perseverance and grit. I truly believe that a sincere focus on these traits can help to support goal achievement and overall success in life. I have had many opportunities to witness first hand examples where this has been the case. More recently I have witnessed one of the best examples of the power of perseverance, grit and determination right here at home, through our daughter Sophie.  

To me, Sophia exemplifies the qualities of perseverance, grit and determination. She has definitely inherited some of this from her mother and I, but she has taken it to a whole new level!  Daily we witness her efforts to set goals, organize, prioritize and execute on her plans. Sophie sets high standards for herself and plans out exactly how she is going to achieve and maintain these goals, and utilizes bullet journalling extensively to stay on track. I am truly impressed with the time Sophie spends detailing her daily, weekly and monthly goals and objectives through her bullet journal.  

Recently Sophie started up a small, online business called Opal and Fern Designs (sorry proud father moment here!) which features artisan bullet journalling stickers and other items that she herself crafted and uses in her own daily journalling. To me this has been a perfect pairing of her talents! She is using her artistic ability and her focus on goal setting to her advantage.  I believe that her business serves multiple purposes. First it provides an outlet for her creativity. Sophie has always been doodling, drawing and creating art from an early age. She loves the Arts, hence taking Art History as one of her majors in university. Secondly, it provides a small income for her. She has been saving up money to attend a university class in Venice, Italy. (currently postponed until next year due to recent flooding and COVID-19). Finally, I personally feel that starting up and maintaining her online sticker shop has offered her a distraction from our current family situation. Sophie has always been a quiet, shy person who avoids conflict and uncertainty. Her intense focus on her university studies and her sticker company allows her a way to express herself artistically, a way to get out of being stuck in neutral, and an escape from our current family reality.

I am so impressed with Sophie's ability to maintain focus, to persevere, to strive to achieve her goals and dreams despite all of the obstacles and barriers that have recently plagued our family. Regardless of our current circumstances, she continues to be laser focused on her university studies. She has a clear plan for her future and is working hard to achieve her goals. Starting up a small online business while maintaining a high calibre university level is an amazing achievement. We are all so impressed and proud of her.  She is our superstar!  We all get very involved in her success and her business, so excited when we see a sale come through on her ETSY shop, fascinated to see the global reach of her business, and all have tips and input - some she has welcomed, others not so much lol!

I continue to worry about her and the rest of my family as the effects of my cancer diagnosis and prognosis continue to take a toll on all of us, not physically but mentally and emotionally. It has been difficult for all of us. Each family member is trying to deal with it the best that they can in their own unique ways. Sophie seems to have found a way to cope with it through the Arts (her passion). She has even got our whole family painting on canvases in our kitchen during this time of isolation to keep us busy and help distract us. 

Like Sophie, I too try to find ways to distract myself and continue to try to maintain positive momentum. My personal determination to stay strong and persevere while dealing with my cancer journey is what I believe has kept me going all this time. Despite the many setbacks and obstacles that have come my way over the past six months I try to push through them and keep going. 

As both Michelle, and Dory from Finding Nemo keep saying,  "Just keep swimming, swimming, swimming"! 

Richard