Bottle Buddy is Back!

The Return of Bottle Buddy.

Well that was fast! We are back at it. As updated in last week's blog, I screened out of the clinical trial and am back under the care and treatment of the excellent team at Southlake.  This treatment I am now heading into, called for  PICC line to be installed since one of my new medications would  need to be administered over a 48 hour period. I was quickly booked for the procedure this week, in time for my first chemo day on Thursday. We've also had more bloodwork, a CT Scan (I think I've had 7 of these to date!), and other screening tests--- it really has been so great to be able to have this excellent follow up and and care so close to home.

Now, this new treatment regime has something old and adds something new to the attack on my cancer.  With the return of one of the previous medications,  comes the return of something I had nicknamed "my Bottle Buddy"! As you may recall, I previously talked about "My Bottle Buddy" in one of my posts earlier this year, back in January. At that time, when that treatment finished up, I was very excited to have my chemo bottle removed and in turn have my PICC line removed. At the time, my bottle buddy was really getting on my nerves. The bottle was with me 24/7 and at that time it was for five days in a row, every 3 weeks for quite a few months. It followed me everywhere I went, I mean everywhere! It even slept with Michelle and I each night, neatly tucked between us with its own pillow to keep it upright, lol. 

As I mentioned in that blog, my "bottle buddy" was a constant and visible reminder of my cancer. It was very difficult to ignore. It wasn't painful or really that uncomfortable. It did however move around a lot, wiggling and flopping from side to side as I moved.  The plastic tubes also seemed to get tangled in the holding pouch a lot. I was successful at hiding it underneath long sleeve shirts. But I have to say it was great to have it off for the summer and I was able to enjoy swimming and wearing t-shirts.  With fall here and winter coming, I guess one silver lining with having my bottle buddy back, is that I will be able to once again easily conceal it under a long sleeved shirt so no one will really be able to notice it (except maybe for the big noticeable bulge under my shirt lol). At least it will only be attached for two days this time, instead of five days in a row like last time. 

Now that we have our sweet new puppy Lily, I will also need to be extra careful that she doesn't try to bite the tube or the bottle.  We shall see how that goes! Lily loves to cuddle up on my knee and I don't want to give up that if I don't have to. So far so good,  she doesn't really seem to pay any attention to it.

How long will bottle buddy be with me this time?  Well, it will be with me for as long as the treatment is working.  Our hope is that this treatment will work for as long as possible. Time will tell!  How's it going so far? Well within the first 10 mins as the new chemo started to infuse, I really could feel it, I had a few side effects that were quickly addressed by my health care team.  I've had some nausea, but overall the meds they give you to take really help to make things more comfortable.  I am immunocompromised, so again, our concerns with COVID are elevated and we are taking extra care, as well as all the extra precautions we take to watch and monitor for any other infections.

All that goes to further say, as I welcome back my bottle buddy and the chemo treatment again, I must admit that we continue to have a love/hate relationship.   I love it when it works, hate it when it is inconvenient or if it doesn't do the job!

I hope that you enjoy your weekend everyone!  Embrace your "bottle buddy", whatever that might be!

Richard

I get knocked down.... but I get up again!

The weeks and months seem to be both flying by and never ending at the same time right now. It was hard to believe that my three month time frame for check up testing was fast approaching again. My oncologist ordered another CT scan to check on the progress of my second regime of chemotherapy treatments. Previously, in my blog posts SCANxiety and SCANxiety2  I  talked about the worry and anxiety that surrounds these tests for both the cancer patient and their families. These tests can bring hope or despair.  What will my latest test results be? 

Unfortunately it resulted in mixed results.  My cancer seems to be very stubborn and uncooperative!  It is still progressing despite the current treatment being given to suppress or eliminate my tumours. It is time again to pivot and cycle to the next stage, to control the spread of this disease. Plan C here we come!

At this time I have been referred to the Princess Margaret Hospital in Toronto and the potential to participate in a clinical trial with a new drug targeting my form of cancer.  We are hopeful that it will be something that I will be a suitable candidate for and able to join as soon as possible. My oncologist seems to think that I am a good candidate for this study and is advocating for me to join with the team at the hospital.

We definitely have mixed emotions at this time. On the one hand we are very disappointed and heartbroken (honestly) that my current treatments are not working or have stopped working. Although the side effects were increasing with this treatment, it was still manageable and attending Southlake for these treatments was really stress free for our family due to its close proximity to our home.  On the other hand, we are happy that there is another possible option out there to cycle through to help control my cancer.  Princess Margaret is a world renowned hospital for treating cancer and we would be fortunate to have this level of expertise and care supporting my treatments.  Fingers crossed that it all works out. Stay tuned. We will give you an update when available. 

You must know by now, that I am just as stubborn and uncooperative as my cancer seems to be. I will not give up! I will not stop until every option is exhausted and we'll keep on pivoting and cycling on. 

Take that cancer!

Richard

Green Thumb Distraction

One of the ways that we have been keeping ourselves busy and distracting ourselves from our current 'situation' is through gardening. Michelle and I have always loved to garden. We have spent many years collecting, purchasing and dividing our perennials to create gardens around the house. We have been fortunate to have participated in a few perennial swaps over the years too, so for the most part we have not had to purchase many of our plants in our gardens. This is great news as we have alot of gardens throughout our property. Perennials are definitely the way to go. We both take great pride in making sure our backyard gardens look good at all times. This can  be somewhat time consuming but we have never regretted our time spent planting, weeding, watering or admiring the results of a day's work.

We love our trips to the local nurseries to check out the latest plants available. Each spring we make our annual trek to a variety of local nurseries to check out the beautiful blooms and backyard oasis products. We could spend a day and a fortune in them. Luckily we have good self control (for the most part) and usually leave with only the items we were coming in for in the first place (but not always)!

Gardening is a great distraction from life. You focus all of your attention on nurturing the soil, arranging the plants, caring for them and watching them grow and change throughout the year. This takes you away from your everyday worries. It becomes a daily task to keep on top of it all. It is great to see that when you select a good variety of flowers and plants to place in your garden, you will have a variety of blooms throughout the seasons. That is the goal, having a forever blooming garden. 

This year our vegetable garden has never been better. Last summer I built Michelle a three tiered container garden and she has filled it to the brim!  With themes for each section of course 

- salsa garden, herb garden, and a variety of different lettuces patch.  We were lucky enough to get our veggie plants early (as it seems that many people decided to take up the 'garden hobby' this year during our time spent social distancing). Our middle son Josh also got into the action, starting some of our plants from seed and contributing jalapeno peppers, romaine lettuce and basil.  I must say that there is nothing better than picking your own fresh tomatoes, peppers, onions or lettuce straight from your garden and making a wonderful meal with them, sort of like our own mini farm to table! Talk about fresh from the garden. Our oldest son Jon, thinks our vegetable garden should be bigger and we should be more sustainable, but our little "victory garden" is all we can handle at this time!

We have come to peace with sharing our veggie garden with a variety of little critters that help themselves to the lettuce and cherry tomatoes on occasion. Can you believe this! As I sit here in my lounge chair by the pool writing this blog post, a squirrel has just ran by me with a large green tomato in his mouth. I kid you not! If only they could help weed once in awhile!

Gardening takes patience and effort. The constant watering and weeding are endless. I swear that some of the weeds grow back before we have even finished the loop around the garden. In the hot, hazy days of summer, it seems that the weeds are the only plants that are flourishing. At one point this summer our grass was almost completely brown with small green patches (of weeds) growing sporadically throughout.  The darn things!  I must say that there are few things more satisfying when gardening then surveying your work when the weeding is done!

As a family project this summer, we have decided to create some stepping stones for our garden pathway. When the kids were small, given I was off in the summers, I would come up with a summer art project to help spark their creativity and help to keep them busy for a few days. When they were younger, we made mosaic tile art. This year, Sophie suggested that we return to this form of art and create mosaic tile stepping stones for the garden. Surprisingly, the boys were also game!  We have all the supplies ready to go. Our hope is to get them done over the next two weeks and before Sophie goes back to university this fall. They will make a great addition to our garden and will be a lasting memory for us all.

Whatever you are going through in your own life, might I suggest that you consider gardening as a therapeutic, natural way to deal with your stresses and anxieties. Trust me, you will not regret it. And if you don't have a green thumb, start small. Plant some hardy perennials like hostas in your outdoor garden (trust me, you can't kill hostas)! It has helped us to deal with our daily emotions, has given us a beautiful backyard view to admire each day, just a great place to start the day.

Happy gardening, we'll keep going with the never ending challenge of the weeds and the tug-of-war for the tomatoes with the squirrels!

Richard

 

Our Photographer

This week's blog is courtesy of My Michelle .

Our home is filled with photographs.  Some are framed and covering most of the available table tops and walls.  Some are in boxes and stored on shelves, in drawers and under dressers.  Lots are on hard drives and stored electronically.  Many are school age photos of our kids, the trusty photo shoots from Sears, proud memories of proms and graduations (our own and our kids), birthdays, anniversaries and family holiday times together. Images that chronicle important events and candid moments in our lives together.

And then you come up the stairs and turn the corner and you see a collection of a different kind, a gallery sampling of some fine quality photography - mainly wildlife, flowers and birds, taken by Richard.   His other personal favourite images to post are "food", and he has been known for posting on facebook some of the more grand Sunday roast dinners and various baking challenges we've might have gotten up to over the years - and there were many!  He actively posts his images on various social and photo club platforms, some have over 30,000 views. Many are very, very good.  I've encouraged him to sell some of the images, but he is reluctant to do so, and I always wondered why.

I myself am not much of a photographer- I'll take a selfie now and again, capture a moment on my phone of something that takes my eye, but generally that job has fallen to Richard to capture the special family moments and memories.  A role not limited only for our immediate family, but our extended family as well.  We  often tease him, our personal papparazzi, as he was always snapping photos, taking so many, to get that perfect one!  But as life goes, and with so much having changed, people who have left us, looking back through all of the images, we are all so glad we have them, and importantly, that he took them.  

Now the challenge with always being the photographer, is you are behind the camera and not as often in front of the camera. So as much as you are a part of the event, with the eye of an artist,  knowing the people so well, and in that quest to capture the perfect moment, he's not always in the photograph! Richard invested in a tripod with a remote control so in recent times, we were able to get all of us in a number of shots, or we would take turns taking the snaps.

I have always been a little cavalier about photos, happy to have them after they are done, glad I bought all of those Sears portfolios of the kids (I was always a sucker to buy the whole thing!), grateful to have them all and the meaning of life they truly represent.   I've never been a person to create reams of photo albums, or scrapbooks, was always too busy or had other things to do.  As organized and a planner as Richard is, surprisingly he didn't push for this either.  But now we plan to go through those boxes and get things in order, print off some of our favourites that currently exist in the digital world, and give some away to others who may enjoy them and take comfort in "remembering when"

Now I get it, especially as you face how fleeting and fragile life can be, the value of capturing those photos. I am so glad he did.  I also get why he doesn't want to sell some of his more artistic ones.   They are a part of him, the things he saw that had some beauty or interest to him personally, something that spoke to him.

Keeping his love in our photographs, my photographer.  

             

Richard's Flickr Photo Gallery

Love, Michelle

Together Is My Favourite Place To Be

This week's blog is courtesy of My Michelle

I am sitting and writing this little note with my laptop on my knee, outside, my feet  up on an ottoman and looking out over our backyard.  What a view!  Our gardens have really come along this year, and with most of them being perennials, we are just getting ready for the summer time show and next round of blooms now that the peonies are fading.  Richard is lounging on the sofa beside me, finally taking time to relax and rest a bit - admiring all of his hard work.  He is my chief gardener, flower bed digger upper,  and all around pool maintenance guy!  It's a hard thing to get him to slow down and rest.  He is always up, busy, finding something to do, or fix, or organize.  But you see, this week we have entered into the second round of chemo, and this is hitting him a little harder than the last series.  A few more side effects, a bit more fatigue, and well the acknowledgement really of the need to slow down, just a bit.  I must admit it's hitting me harder too emotionally.  This week I find too, that the kids  are a little more sombre, a little more considerate and checking in on their dad.

We've been planning a few day trips to visit some of our favourite local spots, with the next one on our list to be the beautiful Niagara on the Lake.  We had a lovely day planned for tomorrow and are just discussing should we go or not.  Our conversation is going something like "Well, it is a bit of a drive, we are kind of tired, what will it really accomplish".  We need to be careful as he is immunocompromised and of course be in consideration with the ever present risks of COVID-19.  But at the end of the day, we are hoping that a change of scenery, maybe a stop at a special little hat store (I want to buy him a hat!), pick up a bottle of wine or two and just getting away, will give our spirits a little lift.  Sometimes you just have to put one foot in front of the other, venture out and go for it!    

We certainly had plans for more grand adventures, more travel, more experiences in far a way places.  While at times we are disappointed that things are not quite working out the way we planned,  I have to say,  all of that really doesn't matter, not really, because together, well that's my favourite place to be.

Love 

Michelle

SCAN-xiety 2.0- Unwelcome News

Previously, in my blogpost entitled SCAN-xiety, I talked about the rollercoaster ride cancer patients and their families go through regarding tests and scans. In that post I described the intense emotions that each test cycle creates for me personally and for my family. It all starts with the worry and wonder leading up to the test. Followed by the anxiousness on the day of the test and finally the concern and the dread of the possible results or outcomes from the test. I must say that waiting for the test results is definitely the most challenging part. Hence the term, SCAN-xiety. 

Last week, I had my regularly scheduled CT scan (which I have booked approximately every three months to keep us and my medical team up to date on the progress of my treatment). It was, like previous scans, fairly routine except perhaps for the new hospital protocols that are in place due to the ongoing COVID-19 issues.  The CT scan itself takes about 15 minutes. The machine pushes you into a cylinder tube that is rotating. It tells you to hold your breath for five seconds (it seems longer than that).  The platform then moves you slowly out of the tube (while you are holding your breath). This happens a few times. Fairly painless overall, except for a few slightly claustrophobic panic moments in the CT scan tube perhaps.  And then you wait! Waiting is painful, not literally but emotionally. 

Usually you wait until your next scheduled appointment with your oncologist to get the scan results however a few days after my scan I received a call from the hospital to indicate that my oncologist wanted to book a phone consult with me.  This was a week earlier than anticipated to discuss the results, which is not usually a good sign. Our family's anxiety levels immediately starting rising after getting off the phone. 

Unfortunately my early phone call was not good news. My most recent CT scan results had shown that my first line of treatment, which had been successful up until this point, was no longer controlling the spread or stopping the growth of my disease. My oncologist indicated that it was time to move onto the second line of treatment options. 

With our medical team, we are now in the process of determining our next steps, which will definitely include a new round of chemotherapy, a new cocktail of chemo drugs to fight this disease.

However disappointing and discouraging this news is for me and my family, we fight on! It is very hard to reconcile this news, with outward appearances and how I feel overall.  My energy level is good, my appetite is good, my outlook is hopeful and I continue to do most all of the things I normally would be doing.  We stay positive and we hope and pray for better news to come. 

We will not give up!  

"Being challenged in life is inevitable, being defeated is optional" ~ Roger Crawford

Richard

Remember When.......

This week's blog comes courtesy of My Michelle. 

This coming week, Richard and I will be celebrating 32 years of marriage.  You know how people always say, "where did the time go", "it seems like it was just yesterday", or "you haven't changed at all".  Well a few weeks back, Richard and Jonathan rigged up our old VCR and we watched our wedding video from 1988.  Well, it was definitely 32 years ago and  we definitely have changed!  But, it was really so much fun to talk to the kids about the "back story" and relive the memories of that day.  

There is something so magical in memories and telling stories of times gone by to your kids.  Its an enduring thing in families I think.  I know my brothers and sisters and I loved to hear my mom's version of how she and my dad had met back in the 50's, how they had met at a barn dance, how he had asked her to dance and she turned him down!  Dad would tease her and tell another version of the story, and well, long story short and after much eye rolling, thank goodness dad persevered and the rest, as they say, is history!  We were digging through some old documents the other day that Richard's mom had saved and came across some love letters from his dad to his mom that she had lovingly saved.  So happy we have these memories to share and pass on to our children, the stories of our lives.

One of the great things about our wedding video is how it captured the music, the dancing, all the fun that we remembered during our reception. Seeing all the disco dance moves, watching that crazy conga line, all of the bridesmaids in their beautiful blue dresses swirling about the dance floor.  Pure Magic!  Re-living the beautiful speeches, words of advice and wishes from our loved ones.  Then there we were: so young, so optimistic, the world at our feet.  Richard had graduated from teaching at Queen's the day before, and I had just completed my third year. We were in such a hurry to get started and share our lives together.

I guess it is only natural heading into this anniversary to be particularly thoughtful and remembering days gone by.  We have a shadow hanging over us all for sure, as we battle through these days.  For us it is a battle for time and preserving Richard's health.  We have scans, tests and treatments that create a great deal of anxiety for all of our family. It is as much an emotional and mental battle as it is a physical one.  What helps?  As you surely know by now, we love music and dancing.  One of our favourite songs is an oldie by Alan Jackson called "Remember When", a tear jerker for sure.  It is truly a song suited to anniversaries and about a love and life well shared.  

If I could, I'd still do it all again!  

Put on the music Richard, meet me in the kitchen and let the dancing continue!

And we'll remember when.

Love Michelle

Anticipating a perfect summer day!

We are so happy that the weather has finally improved and we can all get outside and enjoy some sun in the backyard. It has been a long few weeks being cooped up in the house. Cabin fever was beginning to set in for sure for us.

Michelle and I love to garden. It gives us great satisfaction to clear away the dead debris from our gardens and around our pool to see the perennials and hosta plants trying to peek out towards the sun. We swear that they grow a few centimetres by the end of that first day of cleaning. We love to go to the nursery and pick out our vegetable patch plants and our beautiful hanging baskets the colours and aromas in the nursery are a sure sign of Spring. Luckily the nurseries have been allowed to open this week so we can get to visit them.

We take great pride in our backyard oasis. It takes several days to get it back into shape after the winter. We are amazed at how quickly the weeds can grow (faster then the perennials for sure) in the gardens and in between the interlocking stones.  This week we bought four yards of mulch and have been topping up the beds with it. Amazing what a light topping of rich, black mulch can do to control the weeds and make it look so good. I am thankful that I am still able to fully work in the garden and am really surprised that my stamina remains (although I must admit that I can't go at the pace that I once did). No full out energizer bunny mode however. Slow and steady wins the race, right?

Another sure sign of spring is our annual pool opening. We opened our pool late last year and regretted it, as the warm weather came early and we missed out on a few good weeks in & by the pool. This year we decided to open the pool early. That was a mistake. We have had several days of snow (yes snow) and rain since it has opened. We decided not to turn on the heater. You can't win! We hope to finally turn on the heater this weekend and begin to fully enjoy our pool. Lounging by the pool is so relaxing. It is one of our favourite things to do in our backyard.

Our BBQ has already been busy grilling a variety of menu items. We are currently in the middle of an Erdmann family rib fest contest. Jonathan, Joshua and Michelle have all had a turn so far making their own dry rub and bbq rib sauces. It has been a close and delicious contest for sure. I'm not sure I can top those rib sauces but I will give it a try later this month. We haven't had our pizza oven on the bbq yet but maybe we will be able to get it going this weekend. We are also excited for our first bonfire of the season. Nothing is better then sitting around a crackling fire, roasting marshmallows and watching the glowing flames dance in the moon light. 

Finally it is almost badminton season. We can't wait! The Erdmann's love badminton and we take it very seriously. Our net broke last year so we are a bit delayed in the start of the season. If you happen to get a glimpse of us playing you will most likely witness a gentle game of 'how many volleys can we get over the net' quickly turn into a spike drive battle where the birdie usually ends up torpedoed into someone's body. Don't be fooled, we are fierce badminton players. Watch out! 

I am hopeful that I will still be able to participate fully in these wonderful family outdoor activities this summer. At the moment it looks very promising. My health has been good and I am able to fully participate in all of them at this time. I hope it stays that way! These activities allow us all the time to take our mind off of our current circumstances. They are a wonderful distraction for sure. They bring us joy and bring our family together. More great memories.

Sunshine is the best medicine!

I hope that you are enjoying your backyards and families too. Make new memories and treasure those moments you make together.

Richard

Unsinkable! #Unsinkable

A big thank you to Unsinkable for sharing my story and my personal cancer blog!  You can find my article under the Neighbourhood Heroes section. The article is called Fighting Cancer with Positivity. Check it out if you get a chance.  

Thanks to all for following my journey!

Richard

This Morning, With You, Having Coffee

This week's blog comes courtesy of My Michelle.

I love coffee!  

That promise of the perfect cup of dark roast delight, is one of the things I look forward to every morning.  I come by this love of strong coffee quite honestly.  We always used to joke that my father made coffee so strong the spoon would practically stand up in it!  Richard's family too were big coffee drinkers, and I remember when we were newlyweds and would be home in Kingston visiting from our jobs in Toronto, and Richard's mom Doreen would come over to visit and bring donuts, calling out "Ronnie put the coffee on".  He surely would, and we would have much fun, laughter, talking and getting caught up over a pot or two.  We were so lucky that both our families got along so well.

When our children were young, and life was very busy, I looked forward to precious Sunday mornings when the kids slept in a little longer (with any luck), Richard slept in, and I was able to slip outside with my steaming cup of coffee, Darcy laying by my feet. I would just sit by the pool and watch the morning unfold and I would take the time to think, to plan and to dream.

Despite all that we are going through these days, Richard and I always take time together in the morning, and enjoy our coffee.  It is our special time to gradually wake up with the day, to share moments in quiet conversation while the rest of the household and the world still sleeps.

This morning, with you, having coffee - the best part of my day.

Love Michelle

Everyday Heroes

This week was cancer maintenance treatment week again. To be honest with you, I was a little nervous to go the the cancer centre at all, with the scary stories on the news and online about Covid-19, I really didn't know what to expect. I had visions of multiple sick patients with masks on, scattered throughout the hallways of the hospital, with frantic, tired hospital staff in full gear trying their best to cope with them all. The reality was the cancer clinic was extremely quiet, being isolated really from the rest of the hospital. In fact it was the least number of patients and staff that I have ever seen at the cancer centre (regrettably this is usually not the case).

I was comforted to find that several precautions were in place to support both the patients and staff at the hospital. As soon as you enter the cancer centre you are greeted by health care staff and security that ask you a series of questions, give you a squirt of hand sanitizer and send you on your way. On the chemotherapy floor, the waiting room chairs were segregated with caution tape to ensure that we all sat the required distance away from each other. All of the nursing staff seemed to be in fairly good spirits despite the pressure and stress that they must be under.  

Everyday Heroes

I am so impressed and thankful to all of the hospital staff that are working tirelessly to support all of us that are seriously ill. From the doctors and nurses, to the admitting staff, hospital cleaners, security and all the others that are working behind the scenes. Thank you from the bottom of my heart. I can't imagine what you must be feeling and going through. You have your own families and anxious concerns, yet you come to work to support those of us that rely on you for our medical needs. Thank you!  

Other Local Heroes 

A big thank you to all those that are still working to keep our necessities of life going. Grocery staff, truck drivers, restaurant workers, warehouse workers, pharmacy staff, couriers, nursing home staff, news reporters, and the countless others that have been deemed essential by our government who continue to go to work each day. We thank you for keeping the essential goods, services & information flowing. Thank you!

Thank you also to my friends and colleagues that have been checking in on me and my family via phone calls, texts and emails. These ongoing connections are so important, but especially during these days of isolation for all of us. Even if we can't meet in person, checking in with each other is vital at this time. Thanks to those that have checked in on me. You will never know how much this means to me and my family. I have also tried to reach out to others to check on them to see if they are ok. We all need to do our part! 

Special Request

I have a special request of all of you reading this blog. I ask that you check in on at least two people each and every day (family, friends, neighbours and acquaintances) to see how they are coping during these difficult days. You chose the method (phone call, text, email, video conferencing etc.!) Together we can ensure that physical distancing doesn't mean social isolation and that it doesn't get the best of us!

Finally I would like to thank my online community of friends and followers for keeping me informed and entertained. It seems to be my 'go to' place for 'just in time' information and updates. I do try to limit my viewing of COVID-19 information updates. I don't know about you but the more I watch it, the more anxious I get! Thank goodness for all the creative tweets, posts, videos and blogs that help to distract us. I must say how impressed I am with the creativity of others online. Some make me laugh hysterically, others have me close to tears. Emotions are definitely running high these days.

We are certainly missing our Saturday night hockey games, missing the Toronto Maple Leafs, but all of this is the right thing to do.  

Remember let's keep a hockey stick apart! 

Richard

Uncertain Times

Wow! What a week!

I guess my questions from last week's blog SCAN-xiety have been answered! Social distancing and staying at home are the new norm for all of us, and it seems will remain that way for the foreseeable future. We are happy to report that we have not joined the frenzy for toilet paper hoarding and will not be joining the lines at Costco any time soon! We will be trying online grocery shopping again, doing lots of home cooking/baking and occasionally supporting local restaurants through take out.

How life has changed so quickly for all of us. Just last week we were free to come and go as we pleased. This week, we are all being asked to respect social distancing, to stay at home, avoiding going out into public unless absolutely necessary. We can view this as either a bother or a blessing. As a family, we choose to consider this a blessing! This has given us more time as a family. It has forced us to slow down. It has provided us with time to reflect (and even time for a few naps!) I must admit that we have been staying in our jammies for most of the morning. Another new normal I guess!  

It is definitely a scary time for all of us but especially for those of us that are immune compromised. 

Treatments and appointments must continue regardless of the growing pandemic around us! On Monday I went for an echocardiogram at the hospital. To be honest, Michelle and I were a little concerned about going to the hospital at all under the circumstances. When we arrived, we were greeted by two nurses and a security guard in full protective gear. We were asked a few questions, given some hand sanitizer and sent to the welcome centre to register. I have to say that I have never seen the hospital so empty and quiet. It was a bit eery. It is usually bustling with people and activity. My paperwork was ready as soon as we arrived on the second floor. Even when we got to the waiting room (which is usually packed with people), it was almost completely empty. I was seen almost immediately and we were in an out of the hospital, in less than 45 minutes. A new record I believe!

Next week, I need to return to the cancer centre for my maintenance treatment. I must admit that I am a little nervous about it. Not about the treatment itself, as I have had two already, but nervous about actually going into the hospital. I know that they will have safeguards in place, but I am still a little concerned about gathering with others, especially as the COVID-19 statistics keep increasing.  All cancer patients are immune compromised (and probably they and their loved ones all have the same worry). We must remember that hospital staff (our local heroes) are dealing with patients every day. They are putting their personal safety at risk each day, to help those of us in need. Our treatments are essential. My concerns and worries are not really an option at this point.  

I have always been impressed with the medical staff, support workers and volunteers at the hospital/cancer centre but I must say again how thankful I am for their courage and devotion to all of us that are ill. We can not thank them enough for their efforts.

On the home front, we are all managing well. All I can say is thank goodness for the internet! All of us have been surfing the net (probably more than we should be) but for the most part it has been a great distraction from the fear and anxiety that can creep in, if we let it. We are trying to limit the amount of time watching the news as this activity seems to strike more fear and anxiety rather than calm us down. We are going for a daily walk around the nature trails in Newmarket (keeping a safe social distance from others and trying to go out at non peak times). We are so fortunate to have this trail system in our town. These daily nature breaks help to lift our spirits, provide some much needed exercise and helps to reduce the chance of cabin fever setting in. A bonus side effect of self distancing and staying home for the most part has been that we are making more homemade meals (fresh bread, stews, soups, etc.) and having less take out. We even have been taking turns as a family making dinners. A second surprising bonus has been that for the most part, we have not yet got on each others nerves. I guess moments of self isolation (ie. the kids spending time in their rooms) has helped. Time will tell if this all changes. We will keep you posted. LOL.

Stay safe, stay strong! Stay positive!

#StaySafeStayHome  #socialdistancing 

Richard

Trying to Find Joy, Everyday

This week's blog comes courtesy of My Michelle.

A couple of Christmases ago, Richard and the kids gave me a beautiful yoga mat and carry case which, until this week, still had the tags on it.  You see, it was one of those things I always wanted to try but could never quite find the time to do it. As a career woman and working mom, I could never quite find the interest to be apart from my family - time goes so quickly, the days were so long and full, and I really just wanted to spend time with them when I wasn’t working commuting or travelling. 

However, I recently had to recognize that as the caregiver, I needed to start paying attention and working to replenish my own personal self, so I could better manage for Richard and our family now, and in the future.  I needed to find some time to care for me too. So, I took a deep breath, I cut off the tags and registered for a beginner yoga class. I really enjoyed it! Not only from a fitness perspective, but for what I hadn’t expected, for the messages that really resonated with me when I needed them most of finding balance, practicing self care, believing in my self worth, celebrating love and joy. 

There is no doubt about it, from the onset of Richard’s symptoms when we knew something was not quite right, through to facing his diagnosis and dealing with his treatment,  this has all been so difficult. Seeing him everyday and what he is going through, affects us all deeply. As he fights the cancer, we are ever watchful, monitoring him for signs and symptoms, looking for any changes and with the future ever looming.

For me, it has been particularly hard to find the right balance between being a wife and partner, and a supporter. I have a need to protect and shelter him from harm, the need to try and find answers and options, to fix things, to support and protect our children and also to manage my own difficulty coping with this unwelcome re-writing of our future.

Last week, Richard wrote a blog called “Why am I still taking out the garbage?”.  From my perspective, some of my efforts have been to try and keep things as normal as possible for as long as I can.  So yes - you still have to take out the garbage Richard - it is not avoiding our situation, but rather a celebration, for now at least, this normalcy still exists! 

Cancer does not define Richard. Richard is joyful, loving hopeful, a strong life force with a tireless spirit. With or without cancer, he is the same person, who refuses to let cancer limit him or dictate his life.  

He gives me joy, everyday.

Namaste.

Love Michelle

Ups & Downs

Prior to meeting your oncologist at the cancer centre, you are asked to fill out a quick online survey each time you visit. The survey was created by Cancer Care Ontario and it asks you a series of questions. They include questions about pain, tiredness, drowsiness, nausea, appetite, shortness of breath, depression, anxiety and wellbeing. The survey is written using a Likert scale with rating from 0 to 10. They track your answers over time to see if there are any significant changes in each of the categories.  I assume that the health professionals use the data to monitor your health and wellbeing during your treatments.

Two of the questions that are asked, surprised me. They were the questions about your current level of anxiety and another question asking about your level of depression. When I first began to complete these surveys,  I questioned why they would include them. I have cancer, not anxiety or depression. I began to realize their importance after my second round of chemo.

The Canadian Cancer Society points out, that both the patient and his/her family can, and most likely will go through a series of emotions which can including: shock, fear, denial, anger, guilt, anxiety/stress, loneliness/isolation, sadness, depression and hope. I must say that I have experienced most of these emotions over the last few months.

Levels of anxiety and depression do change over time during treatments. I find (and my family finds) that my level of depressive thoughts significantly increases after my round of chemotherapy (especially the three days following the removal of my chemo bottle).  It also has increased after each round of chemo. I am beginning to wonder if it has something to do with my treatments and the fact that they continue to penetrate my whole body system for extended periods of time.

Despite trying to remain positive, negative thoughts do enter your mind and cause moments of despair. I guess that this is something that should be expected. Even the most positive person has moments of despair. I have previously talked about ways that help me to deal with these emotions including: my family, friends, music, nature and laughter.

Other ways that I am trying to add to my emotional toolkit are; mindfulness exercises and positive affirmations. At times, SWEARING helps too! Those that know me, know that I'm not really the swearing type but I must say that since my diagnosis I have said "F#*K cancer!" more than a few times (usually in my head but occasionally it has slipped out loud). Believe it or not, it does have a short term, immediate positive effect. It seems to release some of my built up stress!

Anxiety can also build over time. The fear of the unknown. What will happen next? Is the treatment making any difference at all? These are all questions that come to the surface periodically. This can cause anxious moments.

My biggest concern at the moment is how to support my family and their emotions, while trying to deal with my own emotions at the same time? We all have our up & down moments in any given day. We are working through these emotions one day at a time and trying to push the positive thoughts to the surface more often than the negative.

Trying to stay positive!

Richard