Fireworks - It's not what you think!

 This week's blog post was written on Tuesday, June 30th.

I am writing this blog post sitting in my chemo chair in the cancer centre on this glorious Tuesday morning. This week I was fortunate to have a chemo chair by the window overlooking the beautiful newly planted hospital gardens, with a blue sky and the sun shining so brightly over the town of Newmarket. If I wasn't sitting here in this chair right now, I would most certainly be sitting by our pool drinking my second cup of coffee, talking with Michelle and watching the birds in our backyard take their morning bath in our birdbath. Being here, stuck in this chair, gives me lots of time to think, contemplate and write.  My treatment today will last 2.5 hours. I am currently in my second round of treatment in this new series. My new chemotherapy plan calls for weekly chemo infusions in a three week cycle. Every fourth week I have a week off. Yay!

I found out that I don't need a PICC line installed on my arm this time. This means no bottle buddy ! I sure don't miss him. (For those of you that don't know who bottle buddy is, it was the nickname given to my portable chemo bottle that I had to wear for a week at a time during my last series of chemotherapy). Having no bottle buddy means that I can still go swimming, take showers without assistance and wear short sleeved t-shirts. Wonderful news for sure, especially over these hot summer days. For the moment, I am free to enjoy all that summer offers.

Internal Fireworks

My side effects this time seem to be a little harsher. The days following my treatment have been tiresome. I'm not as energetic (hyper) as I usually am. I seem more irritable and 'grumpy'. At times I have what can best be described as 'mini fireworks' happening inside my body. These little 'sparks' or 'zaps' seem to be most intensified in my legs & arms but sometimes they occur throughout my body. They are not really painful but do cause some discomfort and are surprising at times. It's like I am having my own mini Canada Day fireworks display going on inside my body, lol.  Luckily, so far, I still don't have any nausea or vomiting. This is great news to me.  I also have infrequent numbness in my arms and hands, but overall I do feel fortunate to still have mostly minor side effects at this time. We shall see how it goes as we continue these treatments. Fingers crossed it stays this way.

As I sit here in my chair, I sometimes sneak a little peak at the other cancer patients in their chairs. It is really hard not to do this as you are literally sitting directly across from another patient and there also five others in close proximity. Why are these chairs always full? It always amazes me the number of people that are here. I arrived at 8:30 a.m. this morning as one of the first patients to be seen and by 9:15 all of the chairs were full. There is definitely not a lot of privacy here. Sometimes you see other cancer patients sneaking a peek back at you too. Your eyes make contact for a brief moment. What are they thinking? Probably the same think that I am thinking, why are you here? As I look around the room at some of the other patients receiving their treatment, many of them look very frail, quite pale and seem exhausted from their treatments. This makes me feel like an imposter. I on the other hand have a nice summer tan happening and am generally quite chipper during treatment. If you saw me, you could never tell that I have cancer. This reminds me how important it is to remember that we can't always see the burdens that others are carrying with them. It is so important to treat others with kindness because you don't know what others are going through.

As the time passes in the chair and I sit here listening to music and continue to write this blog post, I hope and pray that these treatments are all worth it. Will they really make a difference? I am openly agreeing to have toxins administered into my body to fend/fight off my cancer. Will they help to stop the spread of my disease? Only time will tell. Right now this is my best and only defence in this important fight. 

It's time to keep calm and carry on! I only have a few more minutes left in treatment until I can enjoy that cup of coffee with Michelle in the backyard! This morning, with you, having coffee.

Richard

Just keep swimming, swimming, swimming!

Throughout my educational career I have always tried to highlight and champion the ideas around growth mindset, perseverance and grit. I truly believe that a sincere focus on these traits can help to support goal achievement and overall success in life. I have had many opportunities to witness first hand examples where this has been the case. More recently I have witnessed one of the best examples of the power of perseverance, grit and determination right here at home, through our daughter Sophie.  

To me, Sophia exemplifies the qualities of perseverance, grit and determination. She has definitely inherited some of this from her mother and I, but she has taken it to a whole new level!  Daily we witness her efforts to set goals, organize, prioritize and execute on her plans. Sophie sets high standards for herself and plans out exactly how she is going to achieve and maintain these goals, and utilizes bullet journalling extensively to stay on track. I am truly impressed with the time Sophie spends detailing her daily, weekly and monthly goals and objectives through her bullet journal.  

Recently Sophie started up a small, online business called Opal and Fern Designs (sorry proud father moment here!) which features artisan bullet journalling stickers and other items that she herself crafted and uses in her own daily journalling. To me this has been a perfect pairing of her talents! She is using her artistic ability and her focus on goal setting to her advantage.  I believe that her business serves multiple purposes. First it provides an outlet for her creativity. Sophie has always been doodling, drawing and creating art from an early age. She loves the Arts, hence taking Art History as one of her majors in university. Secondly, it provides a small income for her. She has been saving up money to attend a university class in Venice, Italy. (currently postponed until next year due to recent flooding and COVID-19). Finally, I personally feel that starting up and maintaining her online sticker shop has offered her a distraction from our current family situation. Sophie has always been a quiet, shy person who avoids conflict and uncertainty. Her intense focus on her university studies and her sticker company allows her a way to express herself artistically, a way to get out of being stuck in neutral, and an escape from our current family reality.

I am so impressed with Sophie's ability to maintain focus, to persevere, to strive to achieve her goals and dreams despite all of the obstacles and barriers that have recently plagued our family. Regardless of our current circumstances, she continues to be laser focused on her university studies. She has a clear plan for her future and is working hard to achieve her goals. Starting up a small online business while maintaining a high calibre university level is an amazing achievement. We are all so impressed and proud of her.  She is our superstar!  We all get very involved in her success and her business, so excited when we see a sale come through on her ETSY shop, fascinated to see the global reach of her business, and all have tips and input - some she has welcomed, others not so much lol!

I continue to worry about her and the rest of my family as the effects of my cancer diagnosis and prognosis continue to take a toll on all of us, not physically but mentally and emotionally. It has been difficult for all of us. Each family member is trying to deal with it the best that they can in their own unique ways. Sophie seems to have found a way to cope with it through the Arts (her passion). She has even got our whole family painting on canvases in our kitchen during this time of isolation to keep us busy and help distract us. 

Like Sophie, I too try to find ways to distract myself and continue to try to maintain positive momentum. My personal determination to stay strong and persevere while dealing with my cancer journey is what I believe has kept me going all this time. Despite the many setbacks and obstacles that have come my way over the past six months I try to push through them and keep going. 

As both Michelle, and Dory from Finding Nemo keep saying,  "Just keep swimming, swimming, swimming"! 

Richard