Showing posts with label messages of support. Show all posts
Showing posts with label messages of support. Show all posts

Monday, May 11, 2020

Saturday, February 1, 2020

Beating the Average


Back by popular demand! This week's blog post comes courtesy of My Michelle.

I find that we are constantly bombarded in our daily life with the concept of averages - average temperature, average rainfall, average returns on investment (lol), average side effects of a medicine and the average number of people who will be touched by cancer.  It’s like when you buy a new car, and everywhere you look, suddenly everyone has that same car.  I find that everywhere we look, there are statistics on cancer, or coverage in the news on cancer survival rates, or people telling their story about their cancer journey.  If you go online and search up the  "facts and figures" on average rates of cancer and trends, well this is very discouraging indeed.

What is an average?  It is a number, a single value that can be somewhat useful to compare data.  But the thing about averages, well there are outliers.  I learned about this concept early on in my life as it relates to marks in school.  While it was all well and good to achieve an “A”, if everyone had an “A” well, what did it really mean in terms of value?  If however, most had achieved a “B-“, well then, being an outlier and achieving an “A”, that was really something.   So to my mind, when you are talking about cancer and living - we do not want to be average,  an outlier - that’s where we want to be!  And why not us?  Why not Richard?  He is strong, and if anyone can beat the average he can.  

At the time of Richard’s diagnosis, we were presented with some not great averages which were very hard to hear.  Our best shot was to get moving quickly with all of the diagnostics, the radiation treatment, and the chemo, and get him eating.  Richard has completed his first line of treatment, is eating almost normally and returned to his normal weight.  We have a little routine, where every morning I ask him - ‘how are you today’, and most days he ranks himself as an 8/10 - once we have been off the chemo a few days, that is.

We continue to look for options for the next steps in his treatment, new therapies that may be in clinical trials for this type of cancer.  Luckily this is where I can help in advocating for Richard.  We all have an important role to play to support him, keep him laughing, keeping his spirits up and we are so grateful for all the outreach and acts of kindness from all of our family, our friends and peers.  

This past week, there was a focus on mental health with #BellLetsTalk day. One of the key messages of this campaign is about the value of listening and how simple kindness can make a world of difference.  They note it can be a smile, or an invitation for coffee and a chat and asking how you might help.  We find that the fact you are reaching out to us and we know you are there for us, being good listeners is just amazing and greatly appreciated.  

So how do we feel now that this first line of chemotherapy for his cancer is now over?  We are grateful the chemo did what it was supposed to do and the cancer is stable (though it would have been better if it was gone!).  We are doing our best to live and enjoy life as normally as possible with many adventures to be thrown in along the way. 

Most of all, we are fighting to beat the average!  

Here’s to all of the outliers out there  - CHEERS
  
Let's be extraordinary!  Still Kitchen Dancing with you,

Love always,

Michelle

Tuesday, October 8, 2019

In those moments....

Once you hear the words, you have cancer, you really can't think or focus on anything else. It consumes your thoughts. It consumes your day. Most of your thoughts are focused on dealing with the daily issues this disease brings forth and the uncertainty of what your future holds.

There are however, moments when you forget, even for a few minutes that you have cancer.  I cherish these moments. Sometimes they are brief, only lasting a minute or two. Other times they last for longer periods of time. These moments allow me to dream again, to focus on others, to smile and laugh! You could easily spiral down into self pity and a sense of loss of hope. These moments help to refocus your attention on the positives and on possibilities.


I have found ways to help create these moments each day.

Time with Family & Friends

Spending time with my family helps to create these moments. One positive byproduct of this diagnosis is that our family is spending more quality time together. Family walks with our dog Darcy, kitchen conversations, reminiscing about important milestones or memories and frequent FaceTime video calls with Sophie (who is currently away at university) help to shift attention to others. My family has also been burdened with this cancer diagnosis. I'm sure it is on their minds each day. Difficult to escape from it. None of us chose to have this happen but we are forced to deal with it anyway. Trying to continue with normal family routines helps. Focusing on the positive helps. Celebrating small victories helps. Spending time with those that matter the most, definitely helps.

Friends and colleagues have been supporting me in so many ways. I am grateful to have them help me find ways to create these moments. From canoeing on the marsh, to boat rides on Lake Simcoe, to friendly axe throwing competitions. Meeting for coffee, having great conversational walks, text messages; they all help to distract.

Music

Music has always been a way to escape for me. I enjoy many different genres of music from rock to country. From classical to top 40. Music releases stress for me. It allows me to escape the troubles and worries of the day. I have been bringing my headphones with me to chemo so that I can 'escape' during the hours of treatment. The power of music is clear. The change in my emotions simply by playing a certain song is powerful. It can uplift, inspire and change your mindset almost instantly. I have to admit that on occasion you could even catch me dancing around the kitchen.

Social Media

I seem to have this reputation of being obsessed with social media. I do enjoy viewing, posting and creating on social media but I don't consider myself obsessed. I use social media for many reasons: 
to share, to learn, to explore, to connect and to engage. I find it a great learning tool. It allows me to gather and share ideas, resources and learn from others around the world. I must admit that I enjoy it! When I focus on social media, I forget about my worries and it provides me moments to escape and focus on something else.  

Nature

Never underestimate the power of nature! Michelle and I try to go for walks as often as possible. Getting out in nature instantly changes my mindset. I am so grateful for the pathway system that has been created in Newmarket. We are so fortunate to be able to explore our town through a series of interconnecting walkways that are connected to nature. One of my passions is photography. Nature is often the focus on my photo shoots. Nature is beautiful.  It can calm you down. Getting out into nature always creates these moments for me. Give it a try!

Darcy

They say that dogs can sense when something is different or not right. Our dog Darcy has been by my side each day while at home. Wherever we go in the house, he is there with us. When I go for a short afternoon nap, Darcy is snuggled up next to me. He is by my feet when scrolling through my phone, he is with me when I sit outside to get some fresh air and sunshine. We are so blessed to have him as companion.

I am so thankful for these moments and thankful for the people and things that help me create these moments for me. Find your moments!

Food, Glorious Food! Update

I am pleased to report that I can once again can eat solid foods! Not all solid foods but many including: spaghetti, pasta, rice, grilled cheese etc. I even had some salty, crunchy chips during the last Leafs game! Not really a healthy choice, but boy did they taste good! 

Richard









Wednesday, October 2, 2019

Thoughts & Prayers

My family and I have been overwhelmed with notes, texts and messages of support. It is heartwarming to get these messages from family, current and past friends and acquaintances. It must be difficult to write something after hearing or reading the news. What do I say? 

I remember it being difficult to know what to say when I learned about others illnesses or diagnosis. How can you show that you care, that you are there for the person and want to help without intruding or worrying that you may not be saying the right thing. There is no right thing to say! 

Positive messages are always welcome. It is sometimes hard to remain positive when the news and results you are getting are not good and sometimes difficult to understand. Getting a little pick me up message, a joke, a smile, a 'I’m thinking of you' text goes along way to brightening your day. We need to do this everyday for others. We all need these positive thoughts. I challenge you all to send positive thoughts to others in your life each day. Start today!  

Cancer is unique to each individual. Often people try to relate to your cancer diagnosis by mentioning a family member or friend who has gone through their own cancer journey. Everyone means well and wants to share their personal connection to this terrible disease. It still surprises me the magnitude of  how many lives and families this terrible disease has impacted. I can't tell you the number of people who have come forward to say that they themselves have had cancer or a close family member has or has had cancer since I started my blog. I am shocked by this. 

Thoughts and prayers do mean a great deal. Messages of support, periodic check ins and positive thoughts are encouraged. Be mindful that responses may not always be possible but know that your message has been read and know how much it means to me and my family.

It is heartwarming to see the number of people that have said that they are praying for me or have ask others in their place of worship to pray for me. People from many different religious backgrounds. Regardless of who we worship or what we believe in, we all have one thing in common, we care for others. I am so blessed. 

A few days ago I found out that a work colleague of mine had passed away after a long battle with cancer. She fought courageously throughout. My thoughts returned to her smile, her positive attitude and her caring personality. My hope is that she did not suffer in the end and that she is now at peace. My thoughts of her and her family and my prayers to support her family at this difficult time continue.

Thoughts and prayers may not change outcomes but they do change mindset. Mindset is half the battle in my opinion. My one hope is that you will acknowledge others now, letting them know how you feel about them. Don't wait until you have to include..... you are in my thoughts and prayers.

Live this each day!

Richard