SCAN-xiety 2.0- Unwelcome News

Previously, in my blogpost entitled SCAN-xiety, I talked about the rollercoaster ride cancer patients and their families go through regarding tests and scans. In that post I described the intense emotions that each test cycle creates for me personally and for my family. It all starts with the worry and wonder leading up to the test. Followed by the anxiousness on the day of the test and finally the concern and the dread of the possible results or outcomes from the test. I must say that waiting for the test results is definitely the most challenging part. Hence the term, SCAN-xiety. 

Last week, I had my regularly scheduled CT scan (which I have booked approximately every three months to keep us and my medical team up to date on the progress of my treatment). It was, like previous scans, fairly routine except perhaps for the new hospital protocols that are in place due to the ongoing COVID-19 issues.  The CT scan itself takes about 15 minutes. The machine pushes you into a cylinder tube that is rotating. It tells you to hold your breath for five seconds (it seems longer than that).  The platform then moves you slowly out of the tube (while you are holding your breath). This happens a few times. Fairly painless overall, except for a few slightly claustrophobic panic moments in the CT scan tube perhaps.  And then you wait! Waiting is painful, not literally but emotionally. 

Usually you wait until your next scheduled appointment with your oncologist to get the scan results however a few days after my scan I received a call from the hospital to indicate that my oncologist wanted to book a phone consult with me.  This was a week earlier than anticipated to discuss the results, which is not usually a good sign. Our family's anxiety levels immediately starting rising after getting off the phone. 

Unfortunately my early phone call was not good news. My most recent CT scan results had shown that my first line of treatment, which had been successful up until this point, was no longer controlling the spread or stopping the growth of my disease. My oncologist indicated that it was time to move onto the second line of treatment options. 

With our medical team, we are now in the process of determining our next steps, which will definitely include a new round of chemotherapy, a new cocktail of chemo drugs to fight this disease.

However disappointing and discouraging this news is for me and my family, we fight on! It is very hard to reconcile this news, with outward appearances and how I feel overall.  My energy level is good, my appetite is good, my outlook is hopeful and I continue to do most all of the things I normally would be doing.  We stay positive and we hope and pray for better news to come. 

We will not give up!  

"Being challenged in life is inevitable, being defeated is optional" ~ Roger Crawford

Richard

Uncertain Times

Wow! What a week!

I guess my questions from last week's blog SCAN-xiety have been answered! Social distancing and staying at home are the new norm for all of us, and it seems will remain that way for the foreseeable future. We are happy to report that we have not joined the frenzy for toilet paper hoarding and will not be joining the lines at Costco any time soon! We will be trying online grocery shopping again, doing lots of home cooking/baking and occasionally supporting local restaurants through take out.

How life has changed so quickly for all of us. Just last week we were free to come and go as we pleased. This week, we are all being asked to respect social distancing, to stay at home, avoiding going out into public unless absolutely necessary. We can view this as either a bother or a blessing. As a family, we choose to consider this a blessing! This has given us more time as a family. It has forced us to slow down. It has provided us with time to reflect (and even time for a few naps!) I must admit that we have been staying in our jammies for most of the morning. Another new normal I guess!  

It is definitely a scary time for all of us but especially for those of us that are immune compromised. 

Treatments and appointments must continue regardless of the growing pandemic around us! On Monday I went for an echocardiogram at the hospital. To be honest, Michelle and I were a little concerned about going to the hospital at all under the circumstances. When we arrived, we were greeted by two nurses and a security guard in full protective gear. We were asked a few questions, given some hand sanitizer and sent to the welcome centre to register. I have to say that I have never seen the hospital so empty and quiet. It was a bit eery. It is usually bustling with people and activity. My paperwork was ready as soon as we arrived on the second floor. Even when we got to the waiting room (which is usually packed with people), it was almost completely empty. I was seen almost immediately and we were in an out of the hospital, in less than 45 minutes. A new record I believe!

Next week, I need to return to the cancer centre for my maintenance treatment. I must admit that I am a little nervous about it. Not about the treatment itself, as I have had two already, but nervous about actually going into the hospital. I know that they will have safeguards in place, but I am still a little concerned about gathering with others, especially as the COVID-19 statistics keep increasing.  All cancer patients are immune compromised (and probably they and their loved ones all have the same worry). We must remember that hospital staff (our local heroes) are dealing with patients every day. They are putting their personal safety at risk each day, to help those of us in need. Our treatments are essential. My concerns and worries are not really an option at this point.  

I have always been impressed with the medical staff, support workers and volunteers at the hospital/cancer centre but I must say again how thankful I am for their courage and devotion to all of us that are ill. We can not thank them enough for their efforts.

On the home front, we are all managing well. All I can say is thank goodness for the internet! All of us have been surfing the net (probably more than we should be) but for the most part it has been a great distraction from the fear and anxiety that can creep in, if we let it. We are trying to limit the amount of time watching the news as this activity seems to strike more fear and anxiety rather than calm us down. We are going for a daily walk around the nature trails in Newmarket (keeping a safe social distance from others and trying to go out at non peak times). We are so fortunate to have this trail system in our town. These daily nature breaks help to lift our spirits, provide some much needed exercise and helps to reduce the chance of cabin fever setting in. A bonus side effect of self distancing and staying home for the most part has been that we are making more homemade meals (fresh bread, stews, soups, etc.) and having less take out. We even have been taking turns as a family making dinners. A second surprising bonus has been that for the most part, we have not yet got on each others nerves. I guess moments of self isolation (ie. the kids spending time in their rooms) has helped. Time will tell if this all changes. We will keep you posted. LOL.

Stay safe, stay strong! Stay positive!

#StaySafeStayHome  #socialdistancing 

Richard

Blessing or Burden?

Delayed One Week

Last Monday I went to get my blood work done in preparation for my second round of chemo. Blood work is usually done one day prior to chemo to ensure that you are healthy and strong enough for the treatment. When meeting with my medical oncologist to review the blood test results last week, I was surprised to find out that my white blood cells were lower then expected and he informed me that I would need to wait an additional week before I could start my chemo treatment. This came as a surprise as I felt healthy, optimistic and my eating has improved so much over the past week. I was concerned that this was perhaps a bad sign. I have only had one round of chemo so far, was my body not able to handle the strong chemo meds. What would this mean for me?

Blessing or Burden?

My chemo plan calls for one week of chemo and then two weeks off. During the chemo week, I spend one day in the hospital to get two out of the three medication intravenously. This takes approximately 5 hours in the hospital. The third medication is given to me at the end of the session in a bottle containing a balloon of medication. I take home the bottle and wear 24/7 for five days. It contains slow release meds. I plan my life around these treatments. I usually don't feel that great for three or four days after chemo day at the hospital and then gradually start to feel better. During the second and third weeks my health (and mood) improves so we use this time to get back to our 'to do' list and our 'bucket list' items. 

Michelle and I are planners. We like to make lists and schedule things. We have a white board in our kitchen to record upcoming events and use a monthly calendar to record appointments and important  dates to remember. Yes, we are both GOLD personalities.  We find that if you set objectives, write it down, we are more likely to make it happen. As well, with the multitude of appointments, we needed to find a way to keep track of them all. We keep a binder of print outs of all our appointments as well.  Thank goodness for dry erase boards! 

The uncertainty  of my appointment schedule and treatment plan, really creates limitations on these pre-made plans. One thing that is for sure, our lives are now much more unpredictable. This can cause additional stress for those of us that like to have a plan and be organized. We have had to adjust and modify on the fly. We have to adapt and change direction as needed. On the positive side this gives us a chance to live in the moment and be more spontaneous!  But definitely out of our comfort zone.

I have come to understand that many cancer patients have had to wait additional time between chemo treatments and that this is something to ensure that our bodies have recovered enough to be able to handle the next treatment.  The goal is to build up and strengthen, so it can handle being broken down again!  It is the darn cancer cells we want to kill out, but some healthy cells are collateral damage along the way.  It is difficult to wait as I want to move forward to try to remove this disease from my body as quickly as possible. Patience is needed.

So is it a blessing or burden to have to wait another week? I would have to say it is both. On the one hand clearly I am responding to the treatment, but on the other hand could a delay also give the cancer cells a chance to regroup?  Flexibility and patience are my new best friends. These are new character traits that I am learning to add to my repertoire!  

Richard