Just keep swimming, swimming, swimming!

Throughout my educational career I have always tried to highlight and champion the ideas around growth mindset, perseverance and grit. I truly believe that a sincere focus on these traits can help to support goal achievement and overall success in life. I have had many opportunities to witness first hand examples where this has been the case. More recently I have witnessed one of the best examples of the power of perseverance, grit and determination right here at home, through our daughter Sophie.  

To me, Sophia exemplifies the qualities of perseverance, grit and determination. She has definitely inherited some of this from her mother and I, but she has taken it to a whole new level!  Daily we witness her efforts to set goals, organize, prioritize and execute on her plans. Sophie sets high standards for herself and plans out exactly how she is going to achieve and maintain these goals, and utilizes bullet journalling extensively to stay on track. I am truly impressed with the time Sophie spends detailing her daily, weekly and monthly goals and objectives through her bullet journal.  

Recently Sophie started up a small, online business called Opal and Fern Designs (sorry proud father moment here!) which features artisan bullet journalling stickers and other items that she herself crafted and uses in her own daily journalling. To me this has been a perfect pairing of her talents! She is using her artistic ability and her focus on goal setting to her advantage.  I believe that her business serves multiple purposes. First it provides an outlet for her creativity. Sophie has always been doodling, drawing and creating art from an early age. She loves the Arts, hence taking Art History as one of her majors in university. Secondly, it provides a small income for her. She has been saving up money to attend a university class in Venice, Italy. (currently postponed until next year due to recent flooding and COVID-19). Finally, I personally feel that starting up and maintaining her online sticker shop has offered her a distraction from our current family situation. Sophie has always been a quiet, shy person who avoids conflict and uncertainty. Her intense focus on her university studies and her sticker company allows her a way to express herself artistically, a way to get out of being stuck in neutral, and an escape from our current family reality.

I am so impressed with Sophie's ability to maintain focus, to persevere, to strive to achieve her goals and dreams despite all of the obstacles and barriers that have recently plagued our family. Regardless of our current circumstances, she continues to be laser focused on her university studies. She has a clear plan for her future and is working hard to achieve her goals. Starting up a small online business while maintaining a high calibre university level is an amazing achievement. We are all so impressed and proud of her.  She is our superstar!  We all get very involved in her success and her business, so excited when we see a sale come through on her ETSY shop, fascinated to see the global reach of her business, and all have tips and input - some she has welcomed, others not so much lol!

I continue to worry about her and the rest of my family as the effects of my cancer diagnosis and prognosis continue to take a toll on all of us, not physically but mentally and emotionally. It has been difficult for all of us. Each family member is trying to deal with it the best that they can in their own unique ways. Sophie seems to have found a way to cope with it through the Arts (her passion). She has even got our whole family painting on canvases in our kitchen during this time of isolation to keep us busy and help distract us. 

Like Sophie, I too try to find ways to distract myself and continue to try to maintain positive momentum. My personal determination to stay strong and persevere while dealing with my cancer journey is what I believe has kept me going all this time. Despite the many setbacks and obstacles that have come my way over the past six months I try to push through them and keep going. 

As both Michelle, and Dory from Finding Nemo keep saying,  "Just keep swimming, swimming, swimming"! 

Richard

Home Movies - Treasuring the Moments

Like all of you, we are trying to find ways to fill our days now that we are basically sequestered at home for the foreseeable future. As I had previously mentioned in my post Spring Cleaning- Got Junk! , I have been slowly cleaning our basement, which has 20+ years of boxes and discarded items to go through. It has been an overwhelming, tedious task for sure, sorting and sifting through the boxes, bins and collections of stored items. A lifetime of memories are stored down there. It has resulted in some exciting discoveries. 

A few days ago, our son Jonathan came down to the basement to check on me as I have been trying to go downstairs for an hour our two each day to keep the cleaning momentum going (after taking a few weeks off). It has given me a purpose or job to do each day during these long days at home. Jon quickly noticed that I had uncovered one of my old video recorders, along with a box of video cassette tapes and even a collection of old film reels from my childhood. Jon, being a film affcionado and a lover of all things to do with movies and technology, immediately brought these items upstairs and was trying to figure out how to get them operational again. In no time, he had the video camera charging, figured out how to link it up to the flat screen and we were ready to go.

We decided to have a viewing party that night. Having not taken the time to label the video cassettes when I should have years ago, each cassette was a mystery tape. Child birth, birthday parties, christenings, family BBQ's, even surprise videos that my parents had taken on their trips and vacations that I have never seen before. What a discovery.

Our now adult children were mesmerized at seeing themselves as babies and during their toddler years. What a treasure it was to be able to show them what they were like back then. Michelle and I had almost forgotten their baby voices, their actions and reactions. It was great to see and hear them at this age again. Our kids couldn't get over how young Michelle and I looked- mind you, we think we hadn't changed at all (lol). In some of the videos, we were close to the same age as Jon is today. 

These videos took us back in time, so sad but also wonderful to see family that have now passed on, to re-live family celebrations, moments that were captured on video that might have been forgotten forever. It was wonderful to hear our children's voices, how they they giggled and spoke as young children and to hear the voices of those family members that had passed on or changed due to health. The videos also showed the little nuances and activities going on in the background.  Photographs could never capture those for us to remember. In this age of instant Snapchat photos and fifteen second phone video clips - home movies are a dying art!

I have to admit that I got very emotional watching these videos. Many of these videos had me choked up and almost in tears and Michelle had to leave the room. Not only because of the emotions of the memories that can flooding back to me while watching them but also because I began to think about the events and moments that I would not be a part of in the future. Cancer will eventually rob me of my chance to be apart of making memories with my family. I resent this. I have to admit that it makes me angry at times and melancholy too.

We are slowly working through the video cassette tapes, labelling them and hoping to hold video viewing parties every now and then. Next on the list is our wedding video and then going way back to the 8 mm movie reels so that our kids can see what life was like when dad was a baby. Luckily I also found the projector so that we can watch them too. Fingers crossed it still works.

I encourage you to dig up your old albums and home movies, spend some time looking through them. Set up a viewing party of your own. You will never regret the time you spend, the conversations that they ignite, the laughter and tears, the memories that come back to life before your eyes.  

Keep making memories, capturing & treasuring the moments.

Richard

The Power of Walking

This week’s blog comes courtesy of My Michelle.

“I’m walking, yes indeed and I’m talking, about you and me!” (Fats Domino)

Richard and I love to exercise and go to the gym, and while his current cancer battle, the restrictions due to COVID 19 and the important need for physical distancing has limited us somewhat, one thing we can definitely do is get outside and WALK!  And walk we do - often averaging 13-15,000 steps at a time. We are so fortunate to live here in Newmarket, where so much attention and planning has gone into creating and preserving greenspace and the provision of extensive walking trails. We walk on the path near our house and have a favourite loop we have mapped out, but we also venture out to the paths around Fairy Lake, the Tom Taylor Trail, as well as along the Nokiidaa Trail.  Appropriately, the word Nokiidaa comes from the Ojibwa and means “Walking Together”.  

On our treks we often run into many old friends and acquaintances, especially folks who know Richard from his 30 plus years in education - peers, families, former students. I actually do not think that I can think of one walk where we didn’t get a “Hi Richard! How are you!”. What’s also great about our walks, is that for the most part, I have Richard all to myself.  To hold hands, to link arms, to encourage him up the hills, to stop and take photos of a point of interest or two, and best of all, to talk. The conversations are different now, more focused on the here and now, logistics of appointments or treatments, things that need to get done, but always with a base of an unspoken appreciation of each other & treasuring our time.  

Lately our son Joshua has been joining us, and this takes the conversation to another place as he is always very concerned for Richard and how he is feeling, likes to see his dad active and walking, encouraging him to work through aches and pains, to keep moving.  Sometimes with physical distancing, I drop behind the two of them as we walk past others, and I love those moments actually, as I see them walk side by side, and I can see how similar they are, same walk, same posture, same stature. There is so much of Richard in each of our children, and I take comfort in that.  

The benefits of walking to your physical and emotional health and management of stress are undeniable. I find at times I am also able to work through issues and problems while I am walking, gaining clarity of thought.  Throw in some sunshine, the promise of some warmer

weather, your loved ones, and well it’s a win-win all around.

It's not where you walk, it's who walks with you.

So join us, lace up your runners, keep calm and walk on.

Love Michelle

Uncertain Times

Wow! What a week!

I guess my questions from last week's blog SCAN-xiety have been answered! Social distancing and staying at home are the new norm for all of us, and it seems will remain that way for the foreseeable future. We are happy to report that we have not joined the frenzy for toilet paper hoarding and will not be joining the lines at Costco any time soon! We will be trying online grocery shopping again, doing lots of home cooking/baking and occasionally supporting local restaurants through take out.

How life has changed so quickly for all of us. Just last week we were free to come and go as we pleased. This week, we are all being asked to respect social distancing, to stay at home, avoiding going out into public unless absolutely necessary. We can view this as either a bother or a blessing. As a family, we choose to consider this a blessing! This has given us more time as a family. It has forced us to slow down. It has provided us with time to reflect (and even time for a few naps!) I must admit that we have been staying in our jammies for most of the morning. Another new normal I guess!  

It is definitely a scary time for all of us but especially for those of us that are immune compromised. 

Treatments and appointments must continue regardless of the growing pandemic around us! On Monday I went for an echocardiogram at the hospital. To be honest, Michelle and I were a little concerned about going to the hospital at all under the circumstances. When we arrived, we were greeted by two nurses and a security guard in full protective gear. We were asked a few questions, given some hand sanitizer and sent to the welcome centre to register. I have to say that I have never seen the hospital so empty and quiet. It was a bit eery. It is usually bustling with people and activity. My paperwork was ready as soon as we arrived on the second floor. Even when we got to the waiting room (which is usually packed with people), it was almost completely empty. I was seen almost immediately and we were in an out of the hospital, in less than 45 minutes. A new record I believe!

Next week, I need to return to the cancer centre for my maintenance treatment. I must admit that I am a little nervous about it. Not about the treatment itself, as I have had two already, but nervous about actually going into the hospital. I know that they will have safeguards in place, but I am still a little concerned about gathering with others, especially as the COVID-19 statistics keep increasing.  All cancer patients are immune compromised (and probably they and their loved ones all have the same worry). We must remember that hospital staff (our local heroes) are dealing with patients every day. They are putting their personal safety at risk each day, to help those of us in need. Our treatments are essential. My concerns and worries are not really an option at this point.  

I have always been impressed with the medical staff, support workers and volunteers at the hospital/cancer centre but I must say again how thankful I am for their courage and devotion to all of us that are ill. We can not thank them enough for their efforts.

On the home front, we are all managing well. All I can say is thank goodness for the internet! All of us have been surfing the net (probably more than we should be) but for the most part it has been a great distraction from the fear and anxiety that can creep in, if we let it. We are trying to limit the amount of time watching the news as this activity seems to strike more fear and anxiety rather than calm us down. We are going for a daily walk around the nature trails in Newmarket (keeping a safe social distance from others and trying to go out at non peak times). We are so fortunate to have this trail system in our town. These daily nature breaks help to lift our spirits, provide some much needed exercise and helps to reduce the chance of cabin fever setting in. A bonus side effect of self distancing and staying home for the most part has been that we are making more homemade meals (fresh bread, stews, soups, etc.) and having less take out. We even have been taking turns as a family making dinners. A second surprising bonus has been that for the most part, we have not yet got on each others nerves. I guess moments of self isolation (ie. the kids spending time in their rooms) has helped. Time will tell if this all changes. We will keep you posted. LOL.

Stay safe, stay strong! Stay positive!

#StaySafeStayHome  #socialdistancing 

Richard

SCAN-xiety

Last week I went for my second maintenance treatment at the cancer centre. After I had made myself comfortable in the infusion chair, the attending nurse asked me when was my last visit with my oncologist? I quickly explained that I had just visited him last Friday to get the results from my recent CT scan. She followed up with a question about the CT scan results. She was very careful to say it in a way that would be supportive regardless of my response (either positive or negative). Luckily I was able to give her a positive response this time. My recent CT scan results indicated no new growth of my tumours. This was, as I was told, good news. My oncologist was pleased with the results and booked a follow up CT scan in three months time.  

The nurse then went on to tell me about her friend, who had breast cancer and her reaction to these tests. She explained that her friend used to call the lead up to getting these test results as having "SCAN-xiety". This immediately resonated with me. This was so true. 

These scans are meant to give us an update on the progress or lack of progress in fighting this disease and yes, they can be very anxiety inducing. You never quite know what the results will be and the waiting time between the actual scan and seeing your oncologist about the results can be a nerve racking time. 

I believe (if my count is accurate) that I have had four CT scans and three MRI's since being diagnosed with cancer in August, along with a series of other tests and procedures. I previously talked about these tests in my blog post, Needles, Scans and Tests Oh My! For the most part, the results have been fairly positive but let me tell you that slow walk to the cancer centre that Michelle and I have taken several times over the past few months have been stressful and anxious each time. As I have stated, so far the results have been relatively positive (since the initial results that were a devastating blow to our family). We hope they stay positive for a long time!

New Anxiety

A new anxiety is fast emerging in our family and I am sure in your family as well. We are all now concerned about the Coronavirus. This is scary new territory for all of us but especially for those of us with lower immune systems, who are at higher risk according to Health officials. As a family, we are asking ourselves: Should I/we be going out in public? Do I/we shake hands with people?  How do we react when people lean in for a hug? Maybe with the social distancing request from Public Health, this will not be an issue for me. Do we need to join the frenzy and stock up on toilet paper and canned goods too?  Should I be going out, should I go out to restaurants, can we go to the mall with the concerns about large crowds? 

I guess for now we will take it day by day (as all of us must do) and make informed decisions about what is in the best interest of our family's health. I have to admit that these are scary times. 

We are trying to remain calm and stay positive. We hope that you are able to do the same.

Keep calm and hand wash on!

Richard

Trying to Find Joy, Everyday

This week's blog comes courtesy of My Michelle.

A couple of Christmases ago, Richard and the kids gave me a beautiful yoga mat and carry case which, until this week, still had the tags on it.  You see, it was one of those things I always wanted to try but could never quite find the time to do it. As a career woman and working mom, I could never quite find the interest to be apart from my family - time goes so quickly, the days were so long and full, and I really just wanted to spend time with them when I wasn’t working commuting or travelling. 

However, I recently had to recognize that as the caregiver, I needed to start paying attention and working to replenish my own personal self, so I could better manage for Richard and our family now, and in the future.  I needed to find some time to care for me too. So, I took a deep breath, I cut off the tags and registered for a beginner yoga class. I really enjoyed it! Not only from a fitness perspective, but for what I hadn’t expected, for the messages that really resonated with me when I needed them most of finding balance, practicing self care, believing in my self worth, celebrating love and joy. 

There is no doubt about it, from the onset of Richard’s symptoms when we knew something was not quite right, through to facing his diagnosis and dealing with his treatment,  this has all been so difficult. Seeing him everyday and what he is going through, affects us all deeply. As he fights the cancer, we are ever watchful, monitoring him for signs and symptoms, looking for any changes and with the future ever looming.

For me, it has been particularly hard to find the right balance between being a wife and partner, and a supporter. I have a need to protect and shelter him from harm, the need to try and find answers and options, to fix things, to support and protect our children and also to manage my own difficulty coping with this unwelcome re-writing of our future.

Last week, Richard wrote a blog called “Why am I still taking out the garbage?”.  From my perspective, some of my efforts have been to try and keep things as normal as possible for as long as I can.  So yes - you still have to take out the garbage Richard - it is not avoiding our situation, but rather a celebration, for now at least, this normalcy still exists! 

Cancer does not define Richard. Richard is joyful, loving hopeful, a strong life force with a tireless spirit. With or without cancer, he is the same person, who refuses to let cancer limit him or dictate his life.  

He gives me joy, everyday.

Namaste.

Love Michelle

Words to Live By

Over the years I have found inspirational quotes from others that have inspired me and have stayed with me throughout my life. I have shared them often and want to share them once again with all of you, as a reminder of how putting these words into action each day can have a profound impact on our lives and the lives of others. 

Here we go!

" Treat others the way you wish to be treated. "  

~ The Golden Rule

This I must say is one of my all time favourite and most used quotes! I have used this quote both as a teacher and later as a principal. I have tried to follow the Golden Rule as much as possible throughout my life. I think it best sums up how we should act towards each other. As I read the headlines and watch the news these days, I think that we need to embrace this quote more now than ever.  I must say how impressed I am with the staff and volunteers at the cancer centre who support patients each day. They all seem so kind and caring and from my observations, demonstrate respect for all the patients battling this disease. It must be difficult for them to stay positive as well as they see and deal with so many cancer patients and their families.   

" No act of kindness, however small is ever wasted. " 

~ Aesop

A smile, a gesture, a small act of kindness, can go along way. Often we don't realize the impact our actions have on others. They can be positive or negative. When kindness is offered to others, it impacts both the giver and the receiver. Being kind to others is free and doesn't really take much effort but its impact can be life changing. I must say that I am overwhelmed with the kindness shown to me and my family during this difficult time in our lives. We have been blessed with kindness from many. In return, we have tried to show kindness to others, to keep passing it forward. Kindness can be contagious!

" Carpe Diem! " Seize the Day!

Ever since I watched the movie Dead Poets Society staring Robin Williams, I have loved this quote. I even purchased a small plaque with it written on it and prominently displayed it

in my office to remind me that even during the toughest days, the days when I wanted to give up, to keep pushing and make the most of it. This could be the most important quote for me right now as I continue to battle cancer. I am trying hard to Seize each Day! To fight the fight and to find the joy and laughter that each day can bring. I must admit that some days are easier than others to make this happen. I encourage you to Seize the Day too!

" People will forget what you said, people will forget what you did, but people will never forget how you made them feel. " ~ Maya Angelou

This too is such and important quote. My hope is that people will remember me as a kind, caring person who was family focused. I have tried to live my life in a positive manner and hope that I have made people feel good about themselves in some way.  I try to see the good in all people. We all appreciate a kind word or gesture from others. Making people feel good about themselves costs nothing but can make a world of difference to them. 

" You will miss 100% of the shots that you don't take." 

~ Wayne Gretzky

Being a Canadian, and a fan of hockey, I had to include this quote from 'The Great One'.  If you don't try it will not happen. I have tried to live my life this way (although I still haven't tried sky diving, rock climbing or bungie jumping- I think those days have now passed.) If you don't engage or participate, it will not happen. Take risks, try new things, explore next adventures. I'm not what you would call a 'risk taker' but recently I have decided that I need to move beyond my comfort zone and be more of a risk taker. Let's see what I can get myself into over the next few weeks and months!

What are your treasured quotes that you live by? What inspires you? Please share.

One last quote to share.....

" Sometimes you will never know the value of a moment, until it becomes a memory."   ~ Dr. Seuss

Here's to making moments into memories! 

Richard

Beating the Average

Back by popular demand! This week's blog post comes courtesy of My Michelle.

I find that we are constantly bombarded in our daily life with the concept of averages - average temperature, average rainfall, average returns on investment (lol), average side effects of a medicine and the average number of people who will be touched by cancer.  It’s like when you buy a new car, and everywhere you look, suddenly everyone has that same car.  I find that everywhere we look, there are statistics on cancer, or coverage in the news on cancer survival rates, or people telling their story about their cancer journey.  If you go online and search up the  "facts and figures" on average rates of cancer and trends, well this is very discouraging indeed.

What is an average?  It is a number, a single value that can be somewhat useful to compare data.  But the thing about averages, well there are outliers.  I learned about this concept early on in my life as it relates to marks in school.  While it was all well and good to achieve an “A”, if everyone had an “A” well, what did it really mean in terms of value?  If however, most had achieved a “B-“, well then, being an outlier and achieving an “A”, that was really something.   So to my mind, when you are talking about cancer and living - we do not want to be average,  an outlier - that’s where we want to be!  And why not us?  Why not Richard?  He is strong, and if anyone can beat the average he can.  

At the time of Richard’s diagnosis, we were presented with some not great averages which were very hard to hear.  Our best shot was to get moving quickly with all of the diagnostics, the radiation treatment, and the chemo, and get him eating.  Richard has completed his first line of treatment, is eating almost normally and returned to his normal weight.  We have a little routine, where every morning I ask him - ‘how are you today’, and most days he ranks himself as an 8/10 - once we have been off the chemo a few days, that is.

We continue to look for options for the next steps in his treatment, new therapies that may be in clinical trials for this type of cancer.  Luckily this is where I can help in advocating for Richard.  We all have an important role to play to support him, keep him laughing, keeping his spirits up and we are so grateful for all the outreach and acts of kindness from all of our family, our friends and peers.  

This past week, there was a focus on mental health with #BellLetsTalk day. One of the key messages of this campaign is about the value of listening and how simple kindness can make a world of difference.  They note it can be a smile, or an invitation for coffee and a chat and asking how you might help.  We find that the fact you are reaching out to us and we know you are there for us, being good listeners is just amazing and greatly appreciated.  

So how do we feel now that this first line of chemotherapy for his cancer is now over?  We are grateful the chemo did what it was supposed to do and the cancer is stable (though it would have been better if it was gone!).  We are doing our best to live and enjoy life as normally as possible with many adventures to be thrown in along the way. 

Most of all, we are fighting to beat the average!  

Here’s to all of the outliers out there  - CHEERS

  

Let's be extraordinary!  Still Kitchen Dancing with you,

Love always,

Michelle

My "Bottle Buddy"

Written on Tuesday, January 21st, 2020.

As I sit here at the cancer centre, for my 6th and final chemo treatment (at least for now), I can’t help but think about my cancer journey. I wrote about my chemo treatments in a previous post: My Chemo 101.  My six, three week cycles of chemo, will be coming to an end on Sunday. Funny how it seems to have gone by so quickly yet so slowly at the same time. After today’s chemo infusions, the five day countdown clock begins as they put on my portable chemo aka known as my "bottle buddy"! After that, I am free for the foreseeable future! 

Immediately after my chemo infusions at the cancer centre, they attach my portable chemo bottle to my PICC line to take home. This bottle contains a  drug which is delivered slowly over the next five day period. It is the third drug in my chemo "cocktail", each having a specific action to kill any rapidly growing cells in my body.

My "bottle buddy" follows me around 24/7 for the next 5 days. It joins me for my morning shower or bath. It travels with me wherever I go throughout the week. It has attended a Maple Leafs game, a Toronto Rock game and numerous restaurants (thank goodness) over the past few months lol! I wonder where we will venture in our final week together? I try to hide it under a sweater, hoodie or jacket. It does create a noticeable bulge and can easily become an unwanted conversation starter (though I would rather not talk about it).  

My "bottle buddy" is a constant and visible reminder of my cancer. It is difficult to ignore even if you try. It feels like I am carrying a mini water canteen with me. It moves around a lot, wiggles and flips/flops side to side as I move.  The plastic tubes get tangled in the holding pouch or long sleeve shirts I wear to disguise it. I must admit that it can get annoying. I try to forget that I am wearing it, with limited success. So as the saying goes, "short term pain for long term gain", right?

It even comes with me to bed each night. My "bottle buddy" has even driven a wedge in my marriage! It comes between Michelle and I in bed! It has its own designated pillow (to keep the bottle vertical during the night). I often wake up during the night to find my bottle has fallen horizontally or the attached tube is across my face. I correct it and try to get back to sleep. This happens a few times a night. Broken sleep reminds me of our baby days. Sometimes I forget that I'm wearing it when taking a late night bathroom run, it quickly reminds me, flopping around. Luckily it has not detached. That would not be good. 

I have mixed emotions about my bottle buddy! I know that it is there to help me. It provides me with my much needed chemo medication and protection. I understand that.  This is an important part of my treatment plan. At my pre chemo appointment yesterday, my oncologist indicated that my cancer has stabilized, but not gone. We choose to take this as a positive sign. Our plan is to "beat the average", and overall I feel pretty good.

I need to thank the anonymous volunteer that hand knitted my portable bottle buddy holder. At the cancer centre you can find hand knitted chemo bottle holders and a variety of knitted hats for those patients that have lost their hair. This is a small but amazing gesture for cancer patients.  If you are an avid knitter,  please consider knitting and donating some of these items to your local cancer centre. I am sure that they would appreciate it. It does make a difference in the lives of cancer patients.

As this is my last chemo treatment (for now), my PICC line will be removed later this week and this will be the last I will see of my bottle buddy. 

A bitter sweet goodbye. Thanks for your efforts in my cancer fight.

Farewell bottle buddy!

Richard

Kitchen Dancing

This week I am pleased to have a blog guest, My Michelle. Enjoy!

I come from a long line of “kitchen dancers” and lovers of music.  We put on the music, and we can’t help ourselves, the dancing soon follows.  I remember watching my mom and dad sneaking in a dance or two, what must have been a welcome release when dealing with a large and boisterous family.  My sisters and I took turns learning to dance with our dad, first standing on his feet as he danced us around, progressing to the old two step and then jiving.  We sisters would also dance together, taking turns on who would lead and who would follow, throwing in a dip or two. As we grew up and boyfriends came and went, husbands joined our family and my dad passed away, the opportunities for kitchen dancing naturally waned and changed.  But then - I met this wonderful man, Richard, from a small family, who also came from a family of lovers of music and “kitchen dancers”. He fit right in, took my hand and twirled me around the kitchen and we have been dancing ever since! My mother would often comment on how she would think of Richard and I dancing in the kitchen and how it would make her smile to think of us so happy and dancing!

We’ve been having a rough go at times during Richard’s cancer journey, but through it all, we still put on the music, and rock out in the kitchen to our favourite songs.  Sometimes we just hold on to each other and sway to an emotional tune or two. While our sons are less than enthusiastic to join in and often give us the “eye roll”, they have been known to hover around and act as DJ, while Sophie is right in there, adding in her moves. We love these simple moments and I know we are raising the next generation of kitchen dancing enthusiasts!

Studies have shown that music can relax your mind, energize your body and reduce stress.  Upbeat music can make you feel more optimistic and positive about life. I know that Richard finds listening to music during his chemo treatment marathons, helps him a great deal - helps to take his mind off what is happening in the moment, to block out the beeps, buzzes and conversations at the infusion clinic. But I know that he is also listening to our favourite songs and doing his own “kitchen dancing” from the infusion chair and planning his moves for when we get back home!

You are always dancing in my heart,

Love Michelle

New Year, New Decade....

2020 is now upon us! Hard to believe that a new decade has begun. I must say that I am happy to see the year 2019 go! It was not one of my favourite years to say the least.  Although the year included my retirement in June from education after 30+ years (which was a wonderful celebration with friends and colleagues), it quickly turned into a total focus on cancer in August. Not the way I wanted to start my retirement and my new adventures. Not the end to the decade that I was imagining. We can’t always choose our journey. Sometimes our journey takes an unexpected turn and personal timelines need to be adjusted. 

With the reality of a new year, new decade upon us, I can honestly say that my long term positive outlook has waned recently.  As the new year begins, I am at times melancholy. Being told that you have Stage 4 Cancer does that to you.  I now focus more on the weeks and months rather than longer term. I plan to make the most of the time that I have, focusing on the things that matter most to me: my wife, family, friends and relationships. I will be focusing on moments rather than things.  Time to let go of the things that are beyond my control. My family's happiness and positive outlook are within our control. We choose POSITIVE! We choose HOPE! We choose HAPPINESS!

My most recent CTScan shows my disease remains stable. We take this as positive news.  I have one more round of chemo in January before we take a break and go on maintenance therapy. I never thought that I would be happy with being labelled ‘status quo’ or 'on maintenance' but at this point, status quo is looking pretty good!  Being stuck in neutral is our new normal. 

Save your Tears for Something Sad

Michelle and I are both Downton Abbey fans. We loved watching the show every Sunday night. Michelle would make a delicious dessert to have while watching the show each week. I really miss those desserts ever since the show has ended! We were excited to hear that a full length film version of the show was in the works. We went to see the film in the theatres when it came out a few months ago.

One of the scenes resonated with me while watching the movie. 

Spoiler Alert! Don't read the next paragraph if you haven't seen the movie yet or don't want one of the story lines revealed (don't say I didn't warn you!) 

Near the end of the movie we learn that Dowager Countess of Grantham is dying and only has a short time left to live. She pulls Lady Marry aside to tell her that she is terminally ill. This quote near the end of the movie touched me:

Our eternally witty Countess says... “Save your tears for something sad, because there’s nothing sad here.   I have lived a privileged and an interesting life"..."I'll be fine, until I am not".

Save your tears for something sad because there is nothing sad here. I truly believe this. I am saddened that my time with my family will be shortened but am thankful for the time that I have had and still have with them.  We have had many great family adventures and wonderful times. As Dr. Seuss said, "Don't cry because it is over, smile because it happened." I choose to smile and enjoy the memories that we have made together and the times that we have shared together. I hope to share many more this year.

I also believe that I have truly lived a privileged and interesting life. I would not change a thing (except for the cancer part of course!). I have had many great adventures with Michelle and our children and also with my friends and colleagues.  I have been, and continue to be, blessed.  

New Year- There are more adventures that await! Stay tuned.....and I'll be fine until I am not.

Richard

Darcy- My Faithful Companion

They say that dogs can sense when something is not right. I have to agree! Darcy, our family dog seems to sense that I am sick and not myself these days. He seems to be giving me some extra attention and love.  Although Michelle and Sophie ("the girl's") will always be his favourites, he is spending more and more time by my side. We often laugh that he treats each of us in a special way. He has an almost sibling rivalry with Jonathan and Joshua ("the boys") and he know that they are the ones to rough house with. One thing is for sure, he knows how to get our attention for dog treats, often getting more than one from each of us!

Since I have been home (in retirement) he has been my faithful companion throughout the day. Wherever I go in the house, Darcy is there with me. When we wake up in the early morning, to have our first morning coffee, regardless of how early in the morning it is, he is at our feet (so close that we are touching in some way). When we are watching t.v. in the family room, he is lying close by our chairs. When I sneak up for a short nap in the middle of the day, he soon comes up and joins me for a nap (I secretly thing he really enjoys this time of day the most!) 

When my nurse comes to our home for my weekly dressing change and to clean my PICC Line, Darcy is there to make sure she is treating me right, almost guarding me. It did take him a few weeks before he began to warm up to her but I guess she has passed the test, as he seems to tolerate her presence in our home more and simply lies by my feet during the process.

Darcy wants to be with us all the time. When we leave our house to go out for an errand or dinner, you should see the look on his face. He is forlorn and looks heartbroken. He often sits on our staircase with his tail down and has the saddest look on his face. How could you leave me? When we return however, we can see him patiently waiting in the office window, looking for our car to enter our driveway. His tail is wagging a mile a minute when he sees that it is us exiting the car door. When the front door opens his tail is wagging and he gives us the most heartfelt greeting every time. His facial expression seems to be telling us "I missed you and I am so glad that you are back." Everyone should have a welcome greeting like this when they come home each day.

Darcy even helps motivate us to go on our nature walks. He loves to join us as we walk the trails of Newmarket. He helps to ensure that we are going at a good pace but at the same time stop for breaks so he can do his business and sniff out others business along the way! He is always in the lead. I love it when he looks back at us and seems to be saying "Are you guys coming!".

Having a pet takes dedication, commitment and patience, especially when they get older. Darcy, in his 13th year,  no longer has complete control of his need to remind us/give us a warning that he needs to go outside to do his business like he use to do. Indoor accidents are on the rise in our house these days. However, his love, companionship and his unwavering loyalty to us makes up for these new shortcomings.

We love you Darcy and thank you for being an important part of our family! Thank you for being my faithful companion. 

Richard