Unsinkable! #Unsinkable

A big thank you to Unsinkable for sharing my story and my personal cancer blog!  You can find my article under the Neighbourhood Heroes section. The article is called Fighting Cancer with Positivity. Check it out if you get a chance.  

Thanks to all for following my journey!

Richard

Honouring Mothers

Tomorrow is Mother's Day. I would like to use this week's blog post to pay tribute to all of the mothers out there with special mention to the three mothers below.

My own mother, Doreen has been gone now for 20 years (wow I can't believe that), but Michelle and I still think about her often. Around our house there are many mementoes and items that were once hers, from her best china set to little keepsake items and nicknacks. When I think of my mom, it brings a smile to my face. My mother could best be described as an opinionated woman. You definitely knew where you stood with her, and she would tell you. She was a very caring person towards others. She would give you the shirt off her back if you needed it. Her quick wit and her generosity are some of her lasting legacies. One of my regrets is that our three children did not get the chance to really get to know her more. She died a few months before Sophia was born. One thing I am sure of is that she would have spoiled them all rotten. Miss you so much mom!

My wife Michelle is a extremely devoted mother to our three children Jonathan, Joshua and Sophia. I must say that I could not have asked for a better person to fill these shoes. She is such a wonderful mother to them all. Michelle is simply amazing!  Michelle sacrifices her own needs and wants for her children. She is their number one advocate, supporter and champion. Don't mess with her kids! Michelle is the glue that binds our family together. She is the one that helps to calm nerves, mend fences and helps us to realize when we need to be sure to see another's perspective. I love you Michelle with all my heart. You are an amazing wife and mother.

My mother in law, Norma is another amazing mother. Over the years she has raised six children, supported thirteen grandchildren and 8 great grandchildren. I have always been impressed with her steadfast devotion for all of her children. Michelle has had a wonderful model to learn from, in her own mom. Norma is currently in long term care, in a nursing home and we are not able to visit her during this pandemic. We miss her dearly and can't wait for this to be over so we can visit her again. We miss you Norma!

A word of advice to all reading this blog, cherish your time with your mothers because you will truly miss them when they are gone. 

To all of the mothers out there, I salute you. I hope that you have a wonderful day tomorrow! 

Happy Mother's Day!

Richard

This Morning, With You, Having Coffee

This week's blog comes courtesy of My Michelle.

I love coffee!  

That promise of the perfect cup of dark roast delight, is one of the things I look forward to every morning.  I come by this love of strong coffee quite honestly.  We always used to joke that my father made coffee so strong the spoon would practically stand up in it!  Richard's family too were big coffee drinkers, and I remember when we were newlyweds and would be home in Kingston visiting from our jobs in Toronto, and Richard's mom Doreen would come over to visit and bring donuts, calling out "Ronnie put the coffee on".  He surely would, and we would have much fun, laughter, talking and getting caught up over a pot or two.  We were so lucky that both our families got along so well.

When our children were young, and life was very busy, I looked forward to precious Sunday mornings when the kids slept in a little longer (with any luck), Richard slept in, and I was able to slip outside with my steaming cup of coffee, Darcy laying by my feet. I would just sit by the pool and watch the morning unfold and I would take the time to think, to plan and to dream.

Despite all that we are going through these days, Richard and I always take time together in the morning, and enjoy our coffee.  It is our special time to gradually wake up with the day, to share moments in quiet conversation while the rest of the household and the world still sleeps.

This morning, with you, having coffee - the best part of my day.

Love Michelle

Home Movies - Treasuring the Moments

Like all of you, we are trying to find ways to fill our days now that we are basically sequestered at home for the foreseeable future. As I had previously mentioned in my post Spring Cleaning- Got Junk! , I have been slowly cleaning our basement, which has 20+ years of boxes and discarded items to go through. It has been an overwhelming, tedious task for sure, sorting and sifting through the boxes, bins and collections of stored items. A lifetime of memories are stored down there. It has resulted in some exciting discoveries. 

A few days ago, our son Jonathan came down to the basement to check on me as I have been trying to go downstairs for an hour our two each day to keep the cleaning momentum going (after taking a few weeks off). It has given me a purpose or job to do each day during these long days at home. Jon quickly noticed that I had uncovered one of my old video recorders, along with a box of video cassette tapes and even a collection of old film reels from my childhood. Jon, being a film affcionado and a lover of all things to do with movies and technology, immediately brought these items upstairs and was trying to figure out how to get them operational again. In no time, he had the video camera charging, figured out how to link it up to the flat screen and we were ready to go.

We decided to have a viewing party that night. Having not taken the time to label the video cassettes when I should have years ago, each cassette was a mystery tape. Child birth, birthday parties, christenings, family BBQ's, even surprise videos that my parents had taken on their trips and vacations that I have never seen before. What a discovery.

Our now adult children were mesmerized at seeing themselves as babies and during their toddler years. What a treasure it was to be able to show them what they were like back then. Michelle and I had almost forgotten their baby voices, their actions and reactions. It was great to see and hear them at this age again. Our kids couldn't get over how young Michelle and I looked- mind you, we think we hadn't changed at all (lol). In some of the videos, we were close to the same age as Jon is today. 

These videos took us back in time, so sad but also wonderful to see family that have now passed on, to re-live family celebrations, moments that were captured on video that might have been forgotten forever. It was wonderful to hear our children's voices, how they they giggled and spoke as young children and to hear the voices of those family members that had passed on or changed due to health. The videos also showed the little nuances and activities going on in the background.  Photographs could never capture those for us to remember. In this age of instant Snapchat photos and fifteen second phone video clips - home movies are a dying art!

I have to admit that I got very emotional watching these videos. Many of these videos had me choked up and almost in tears and Michelle had to leave the room. Not only because of the emotions of the memories that can flooding back to me while watching them but also because I began to think about the events and moments that I would not be a part of in the future. Cancer will eventually rob me of my chance to be apart of making memories with my family. I resent this. I have to admit that it makes me angry at times and melancholy too.

We are slowly working through the video cassette tapes, labelling them and hoping to hold video viewing parties every now and then. Next on the list is our wedding video and then going way back to the 8 mm movie reels so that our kids can see what life was like when dad was a baby. Luckily I also found the projector so that we can watch them too. Fingers crossed it still works.

I encourage you to dig up your old albums and home movies, spend some time looking through them. Set up a viewing party of your own. You will never regret the time you spend, the conversations that they ignite, the laughter and tears, the memories that come back to life before your eyes.  

Keep making memories, capturing & treasuring the moments.

Richard

Why am I still taking out the garbage?

Have you ever noticed that when you watch a movie or a t.v. show and the main character is given "just months to live", you see them jetting off to some far away, exotic location or they drop everything to fulfill their 'bucket/wish list' items. All of a sudden, they seem to live a carefree life with no responsibilities, expectations or commitments. They just blow their life savings in the process.

Why am I not jetting off to some far off location every other week? And why am I still taking out the garbage? 

Well, the reality is, for most of us with cancer, this is not an option. We have months of radiation and chemotherapy treatments, time needed to recover and concerns for infection. We have bills to pay, we have appointments to keep, we have other family members that have jobs, school, responsibilities and lives of their own too. We have daily tasks and chores that still need to get done.  We can't just jet off, as a family, and forget about everything else. It's not like the movies. Daily life must and should continue. This actually is what helps to keep us all sane. 

Daily life routines help to create a sense of normalcy in a time when life is anything but normal. Routines help us to fill our days and give us a sense of purpose (especially now that I am in retirement). Most of all, it helps to take our minds off of our 'situation' and find the strength to keep moving forward (who knew that taking out the garbage could do all this, lol).

Don't get me wrong, we do want to travel and explore. We are just trying to navigate the barriers in making this happen at this time now that my chemo is over and I am on maintenance.

Even if we wanted to go and explore all of our 'bucket list' locations, it is very difficult to secure travel insurance when you have a terminal illness. We would also need to schedule the trip between appointments. With the coronavirus concerns at the moment, we are thinking that this is not the best time to travel abroad.

Our hope it to have a wonderful family vacation (within Canada) in the near future. We are sorting out the time,  destination and working on logistics, but it will happen! We deserve it and really need something to look forward to as a family. 

So believe it or not, taking out the garbage, loading the dishwasher, getting groceries and shovelling the snow, is all helping in some small way to keep us moving forward. Moving forward is the only way to go!

There are so many wonderful places to see and visit right here in Canada. There are still a few places that we have not had the opportunity to explore. 

And besides, there is no place like home! 

Richard

Family is Everything!

This past Monday like most families in Canada, we celebrated Family Day. We were lucky enough to have all five of us home and off for the day. As well, Sophie was able to be with us, as it coincided with university reading week. This meant the Erdmann clan were all back together, even for a short while, under one roof again. 

This year, Family Day was a gloriously sunny winter day. Michelle, Sophie and I took advantage of the great weather and decided to go on a long walk to get some fresh air and to get in some exercise. Enough with hibernation!  We were tired of being cooped up due to the recent cold temperatures and decided to take advantage of the sunny day. We got in over 20,000 steps that day! I guess the lure of a warm Starbucks at the half way point of our walk, did the trick in keeping us motivated to keep walking. Unfortunately the Starbuck motivation did not entice Jonathan and Joshua to join us, preferring to sleep in!

"No family is perfect.... We argue, we fight. We even stop talking to each other at times. But in the end, family is family... The love will always be there!" ~ Author Unknown.

All families are unique. I don't know about your family but sometimes we struggle to get all five of us on the same page at the same time (this is often true when we are trying to select a restaurant to visit for dinner). We are five adults, living together with our own opinions and viewpoints, which don't always match.  We seem to have the unique ability to know exactly how to irritate one another and at the same time be able to say something that will bring us to tears of laughter.  Like the quote above states, we even stop talking to each other at times, but in the end we seem to find a way to forgive each other and move on. We do love each other so much, the love will always be there.

                      

At the moment, our family remains Stuck in Neutral.  It may be the time of year (the winter blahs) but I feel that it is more than that. We are all struggling with what the future holds. Our family seems to be staying strong and crumbling at the same time. 

Each of us are dealing with this cancer battle in our own way. From denial, to avoidance, to struggling to maintain a work focus, to moments of melancholy, back to resilience and hope. All of us have emotions that are on a wild rollercoaster ride. 

I wish my family didn't have this burden on their shoulders. Why do they have to deal with this? It doesn't seem fair. We try to put on a brave face but behind the scenes it can be difficult. We know the facts of my cancer. We know that all of these treatments and therapies are to extend my life, not cure it. 

Michelle and I have been honest with our children. We have told them the truth, right from the beginning, even though it was very difficult. They had a right to know. The truth is I have stage 4, inoperable, esophageal cancer. I am in palliative care. The uncertainty and the unknown of how much time is left can be stifling. We try to keep reminding ourselves that none of us really knows how much time we have left. There is alway hope, even when hope seems impossible. Staying positive is our only option.

Life is not always fair. Many families, like ours are dealing with or have dealt with this terrible disease. It seems that every time I turn on the t.v., read an online article or speak with someone, they have a cancer story to share. 

I can't imagine dealing with this disease without my family. I love them all so dearly. Our daily interactions may not always show it, but each of them gives me the strength and inspiration to continue to fight on! Really, we have no choice but to deal with this. I'm glad and thankful that I have my family by my side throughout this battle.

I'm going to be selfish here and say I want as much time as possible with them, even if we are not always 'the perfect family', we are a family that cares deeply for each other. Being perfect is overrated anyway!

My family is everything.

Richard

P.S. Yesterday, after 13 years, we lost an important member of our family. We had to say goodbye to our beloved dog, Darcy. I wrote about Darcy in my post Darcy- My Faithful Companion. We miss him deeply!  

 

Spring Cleaning- Got Junk?

Michelle and I have lived at our current home in Newmarket for almost 20 years now. We moved into our home in early December 2000.  It has been our sanctuary and haven ever since.

When we moved in, Jonathan, Joshua and Sophia were six, four and one years old respectfully. Michelle and I were, during the late 90's, perpetually  sleep deprived. (I think I may have mentioned that in a previous post). This made for an interesting move in.

My dear mother had passed away that year, and we still had many of her personal items from her home, still unopened in boxes & bins in our garage and basement at the old house. On moving day, we simply placed all of her items, along with a wide selection of our current 'not used' items, into our new basement on moving day. We told ourselves that we would have the time to unpack and organize them later. These boxes and bins are still there, unopened 20 years later. A word of advice - do not delay, do it when you move in, lol.

Over the years we have also found it very difficult to part with items that we have purchased or received. We have changed our decor, purchased newer versions of items or simply indulged in some special gadget or gizzmo and instead of giving or throwing away the older version, we simply placed them in the basement for safe keeping (because you never know, we may decide that you may need them at a later date, right?) or there was always that elusive garage sale we were going to have.  Wrong! 

Over the next 20 years our basement has slowly filled up. If you walked into our basement this very week, you would swear that Michelle and I are hoarders. 

Our basement represents a time capsule of our lives. We have boxes, bins and bags full of days gone by. Full of memories.

Believe it or not, we still have all of the baby furniture and baby toys from our three children there. We have all of the fad toys and gadgets that were 'must haves' packed away on shelves: beanie babies, hockey cards, lego, train sets, hockey equipment,  medieval knights, and a collection of dolls and build a bear accessories (Coco is the best dressed bear in town), such as you would not believe. We thought that perhaps we could pass them down to our children's children some day. We even have boxes of our old university text books from the eighties (just in case we may need to reference them at some point. Really! Why didn't we give them away or throw them away years ago)? Michelle keeps reminding me that we kept them because we were going to turn one of our rooms into a library with a rolling library ladder - her dream. It's still a dream 20 years later!

One of my goals in retirement was to finally tackle the basement. I had planned to 'get it done' over the summer. It was on my 'to do' summer list. It finally needed to be done and there were no more excuses about not having the time to do it. I was no longer on vacation this summer, I was retired now. No more excuses. My cancer diagnosis and subsequent tests and therapies derailed these plans.

Now that my treatments have been completed and I am fairly symptom free, tackling the basement has once again risen the top of the pile of things to do. This is the week that our basement finally gets tackled (or at least started)!

A lifetime of memories currently lives in our basement. Going through these boxes, bags and bins this week is taking much longer than anticipated. Each time you open a new box, you are transformed to a different time and place in our lives. These are memory boxes and bins. The collection represents us and our family. This is making this job very difficult and time consuming, especially at this difficult time in our lives. These memories are so important right now.

When you are diagnosed with cancer, you immediately think the worse. In my case, the worse is my new reality. Still, I have been given the gift of time. My treatments have gone well and they have provided me with more time then my doctors had expected.   

Cleaning the basement (or our trip down memory lane) has been both heartwarming and tragic at the same time. What memories, still to come, will I miss or not be a part of?  But at least right now I can make choices on how to spend my time and with a sense of urgency, make things happen.

As a family and as a couple, we are trying our best to make as many new memories as possible. These memories however, will not be stored in our basement but in our hearts.

Here's to making new memories and to finally tackling your own basements! Do it, do it now but be prepared to go down your own memory lane.

Richard 

Beating the Average

Back by popular demand! This week's blog post comes courtesy of My Michelle.

I find that we are constantly bombarded in our daily life with the concept of averages - average temperature, average rainfall, average returns on investment (lol), average side effects of a medicine and the average number of people who will be touched by cancer.  It’s like when you buy a new car, and everywhere you look, suddenly everyone has that same car.  I find that everywhere we look, there are statistics on cancer, or coverage in the news on cancer survival rates, or people telling their story about their cancer journey.  If you go online and search up the  "facts and figures" on average rates of cancer and trends, well this is very discouraging indeed.

What is an average?  It is a number, a single value that can be somewhat useful to compare data.  But the thing about averages, well there are outliers.  I learned about this concept early on in my life as it relates to marks in school.  While it was all well and good to achieve an “A”, if everyone had an “A” well, what did it really mean in terms of value?  If however, most had achieved a “B-“, well then, being an outlier and achieving an “A”, that was really something.   So to my mind, when you are talking about cancer and living - we do not want to be average,  an outlier - that’s where we want to be!  And why not us?  Why not Richard?  He is strong, and if anyone can beat the average he can.  

At the time of Richard’s diagnosis, we were presented with some not great averages which were very hard to hear.  Our best shot was to get moving quickly with all of the diagnostics, the radiation treatment, and the chemo, and get him eating.  Richard has completed his first line of treatment, is eating almost normally and returned to his normal weight.  We have a little routine, where every morning I ask him - ‘how are you today’, and most days he ranks himself as an 8/10 - once we have been off the chemo a few days, that is.

We continue to look for options for the next steps in his treatment, new therapies that may be in clinical trials for this type of cancer.  Luckily this is where I can help in advocating for Richard.  We all have an important role to play to support him, keep him laughing, keeping his spirits up and we are so grateful for all the outreach and acts of kindness from all of our family, our friends and peers.  

This past week, there was a focus on mental health with #BellLetsTalk day. One of the key messages of this campaign is about the value of listening and how simple kindness can make a world of difference.  They note it can be a smile, or an invitation for coffee and a chat and asking how you might help.  We find that the fact you are reaching out to us and we know you are there for us, being good listeners is just amazing and greatly appreciated.  

So how do we feel now that this first line of chemotherapy for his cancer is now over?  We are grateful the chemo did what it was supposed to do and the cancer is stable (though it would have been better if it was gone!).  We are doing our best to live and enjoy life as normally as possible with many adventures to be thrown in along the way. 

Most of all, we are fighting to beat the average!  

Here’s to all of the outliers out there  - CHEERS

  

Let's be extraordinary!  Still Kitchen Dancing with you,

Love always,

Michelle

Family- Home Sweet Home

To me, December is a time for family. 

There are really only a few times during the year, when most of us can really slow down the pace and take time to enjoy each others company. December holidays are one of these times for our family. December provides opportunities to visit and celebrate with our extended families and friends. Lots of good food, music & good company.  The lead up to Christmas if often hectic and busy but the days after Christmas and before the new year are perfect for slowing down, sitting around in our PJ's, watching movies and decompressing.  Spending time with those that matter the most.

Family means everything to me. I am so glad that we are all able to be together during Christmas. Sitting together for family meals, especially Sunday morning 'big' breakfasts, are something that our family really enjoys doing. As our children grow older, these special moments become harder to arrange. 

Our family is so fortunate to all be together this Christmas. Sophie was able to return from university earlier this year, which is allowing us lots of time to spend together. We are saddened at the same time that we will not be able to enjoy the holidays with our extended family in Kingston, but staying close to home this holiday seems best for us at this time in our cancer journey.  

My family keeps asking me what I would like for Christmas and my response is all I really want for Christmas is TIME.  Time to be with them, time to enjoy each others company. We tend to take time for granted. Time is precious. 

My wish for you all is to continue to make memories with each other. Take time to be with each other as much a possible, especially during the holidays. Use this holiday season to connect or reconnect with your family and build new memories with each other.

This will be my last blog post for 2019. I will be taking a few weeks off to enjoy the holiday season with my family. Our plans include: going for some nature walks, playing board games, watching some of our favourite classic Christmas movies, doing some local day trips and just having a chance to sit, relax and talk with each other (which seems like something of a luxury these days). 

I wish you and your family a wonderful holiday. Enjoy your time with your family. Make some memories!

Richard